I am so lucky to have these people to help me. They are so proactive and lovely. I had a call at 8am from the rheumy nurse and she’s already tried to speak to my GP (who sadly is not in today) however my surgery (another doc) is ready to receive from the rheumy nurse what’s to happen and has seen my email.
The plan... move to injections hopefully for tuesday’s MXT dose. If that can’t be done using District nurse perhaps to administer in time for Tuesday I take 25mg MXT tablet dose for my next dose. I’d rather go straight to injections I think especially as that is what my Rheumatologist was suggesting a month ago.
Over the last year I have so learnt not to be afraid to ask. They can say no that’s not possible but asking and being proactive is so important.
Crossed fingers. 🤞🏻🤞🏻🤞🏻
Please don’t sit in agony suffering ... being in a flare up after all is a covid risk in itself. Please call your teams and tell them you need help and if what they have suggested isn’t helping call or message them again. Hugs to everyone ❤️