Doctor just switched me to Xeljanz I’m supposed to start Saturday & I’m feeling anxious. I was on Leflunomide / Arava since October but I have been flaring to frequently so doctor thought it was best to switch to a biologic. On the Leflunomide I also noticed I lost a lot of hair.
I was very nervous about being able to give myself the Humira shot so that’s why we didn’t go with that.
Just wanted some feedback on the Xeljanz I’m supposed to start Saturday
Great Sassy! Biologics can really help. Fingers crossed!!
I'm sorry I can't give you any advice because xeljanx has only been for a short. I really hope this works for you.
I would kill for a biological treatment, had a bad flare Nov, paid for a private appointment desperate to carry on working had a depot shot, 225 pounds and 75.00 for the steroid injection, couldn't afford another, went to gp after re flare 2 weeks ago tried oral steroids, didn't touch it, had Time of sick still off gp appointment Mon gp gave me a steroid shot, had tried hydroxy between Nov and Feb had to come of this, had problems with methotrexate and sulphasazaline, my health wrecked by this disease, my pharmacy contract with Lloyds has an end date of March 24, I paid privately in Nov despite the cost.
I can't 'like' this. I just wanted to offer sympathy and sincerely wish you better. Hugs
J
Oh no so sorry to hear this. I’m in the US & my rheumatologist told me that the pharmaceutical companies assist with payments. During my flares they increase my prednisone to 20mg but I’m taking 5mg daily because Leflunomide wasn’t working well. I have been on the steroids to long
My sister (lives in France) has been on this for about six years now. Doing really well.
Several other people on this forum have recently started this in the UK, as it's now approved for use in the UK. Put it in the search box and their comments will come up for you.
I'm not on Xeljanz but wish I was. Lovely rheumy said last time that I get too many infections to risk a biologic which is a pity as I've heard glowing reports. Wishing you all the very best.
J
I started Xeljanz about a year ago. It has been amazing. I’ve had regular severe flares for several years. Neither Humira or Cimzia stopped them. Xeljanz has them under control
That's wonderful. Any side effects? Is it expensive? Thanks
With my insurance, I pay $30 a month. I've had some minor tummy trouble and some low grade fevers, both of which I think are side effects (had to tell exactly because I'm on several drugs). Those are minor compared to the symptoms it is relieving.
Thank you! So happy for you! I am trying LDN. Should get it today or tomorrow. Take care
I am being changed from leflunomide to methotrexate injection. I am very nervous about that. The leflunomide didn’t work. I’m not nervous about injecting myself just about the side effects. Will try for 90 days and see what happens. I am going to write the name of your medicine down and suggest out to my Dr. If the methotrexate isn’t good for me. Good luck with everything!
On to the next... any experience with Xeljanz?
Xeljanz vs cimzia 
Yet another new med Xeljanz TOFACITINIB
