feeling tired and resentful

[gengol]

hi, the illness affects my mental health a lot I feel very lonely in my situation. I feel constantly tired and I do not have strength even for ordinary activities. I read about Modafinil. I wanted to know how and if I could get a prescription for it.

[helixhelix]

What illness do you have? As maybe it is not being treated as well as it could be if you feel so bad? Talk to your doctor. Generally it is not a good idea to take a drug designed to treat one condition if you don’t have that condition. And these drugs are prescription only.

[gengol in reply to helixhelix]

hi, My disability is rheumatoid arthritis and I am in the end stage,deformation of the hand joint of all fingers and feet,feeling constantly scared and depressed

[helixhelix in reply to gengol]

Which drugs have you tried for your rheumatoid arthritis? As perhaps there could be other ones that would be better for you?

[sylvi]

Hugs darling now your not alone here. I can't answer your question i am afraid. xxxx

[gengol in reply to sylvi]

Hello, thank you very much for your interest and words of encouragement, because now I need them,i sorry if i choose the wrong words but i use google translator

[sylvi in reply to gengol]

Your welcome darling.xxx

[Soundofmusic52]

Sorry can’t be much help to you but today I feel exactly the same as you really fed up hands fingers swollen can’t be bothered to do anything just woke up but could go back to sleep I am on benepali and methotrexate for this bloody rheumatoid arthritis been feeling fine for ages then it creeps up on you and it starts all over again what a pair we are everyone on this site understand s what we mean sorry I am not much help tomorrow is a new day stay safe x

[allanah]

Poor you, feel sad for you. Have you got access to a doctor?

[oldtimer]

Have you read this: bnf.nice.org.uk/drug/modafi...

The reasons for it being a prescription only drug are that it can have serious side effects.

Unless you have narcolepsy, it would be unlikely to be prescribed in the UK anyway. It hasn't been recommended for the type of fatigue that we have that is always worse when Rheumatoid Disease is having a flare, but can really make you feel dragged down.

It's worth looking at other methods of coping, pacing yourself, giving yourself little rewards, talking to others, etc.

Please feel free to have a good moan on here when you are feeling down! It's a very supportive forum.

[Pippy25]

I'm so sorry to hear you are feeling lonely, depressed and scared. Do you have any support at all from family, friends or health professionals? It's a vicious cycle when you are in pain and with what we have been experiencing individually with this global pandemic it will have only added to things I'm sure. Pain drags you down, fatigues and tires you and it's hard as you know to not only physically to do things, but it affects your emotional ability too. My heart goes out to you, as it can get overwhelming and being on my own too, while I don't know what you are going through personally, I can understand how this must feel. Can you contact your GP or Rhumy and explain how you are feeling? They may be advise or able to signpost you to treatments or services which may help. Or there is the NRAS helpline who may be able to help. Please don't feel alone in this. If you need to let it out or have a moan, as others have said we are here. Sometimes just getting it off your chest can help and again this is a forum where people having RD understand what people are going through. Sending you some warm supportive and good wishes, Pip x

[Fruitandnutcase]

Sorry I can’t help you gengol but I hope things get better for you soon, sounds like you could do with some help.

Maybe you could speak to your doctor tomorrow- if your doctor is like mine it will have to be by phone.

[Oshgosh]

Welcome to the forum

[LinaM]

I haven’t heard of that drug , but completely understand the despair you feel. Just know that you are not alone and sending you best wishes that this horrible flare will be over soon.

[Wobbies]

Sorry that you feel so awful. I know how you feel as I have not seen anyone face to face since February and all the things that I normally get help with I have just not been able to do. Think that makes me feel even more tired and less able. When everything hurts it is difficult to keep going but I have a little rule that I do not do anything for very long as it hurts so much, and try and vary what I do in short bursts. As Sir Captain Tom says" Tomorrow Will be a better day." I repeat that to myself each night and hope it will come true. Perhaps you should discus how you feel with the doctor to see what help can be offered. Stay safe and remember you are not alone. There are lots of us.

[Ros23]

Soul destroying when we get a flare up, perhaps speak to ur doctor for a bit of support they might offer a steroid injection short term 🙏

[Elmo333]

I’ve taken modafinil for my bipolar as a mood brightened but in truth, it just gave me palpitations!