Lupus Medication

[littlemissp]

I have had lupus for 16 years and have been struggling during this time with different drugs and their side effects. I have retinopathy caused by Chloroquine so cant take that. I am getting really worried as I am quickly running out of options. My rhemy is now suggesting Rituximab and Ciclosporin. Has anyone had experience of these drugs and what side effects did you have? I really want to stop all meds now but am so scared of how I will be without anything !

[bubblyalex]

No idea I’m sorry but I did a search when I was asking about side effects of Sulfasalazine in the search bar.

[HappyD34]

Hello, I’m sorry I can’t help you I have no experience of these drugs but chat through with your rheumy it ask for apt / tel consult with your consultant. The fear of the unknown is very unsettling, I wish you all the best , big hugs and stay strong x

[Lolabridge]

Hello. I have Truxima infusions (a biosimilar to Rituximab) and they have been a game changer for me. I have R.A. but had bad reactions to the usual DMARDS. I’ve not had any adverse reactions to the Truxima (that I’m aware of) and am longing for my next infusion which has been postponed because of Covid. I hope others will reply and reassure you too.

[Summerrain14]

Hi, I have RA and lupus too but I’ve not needed these medications so can’t help I’m afraid. May be worth posting on the Lupus forum of Health unlocked to see if anyone has any experience of these meds. Hope you get some useful advice. Take good care. x