Honestly this weather my poor body and head hasn’t a clue what’s happening..
All over the place like a mad women’s drawers!! - NRAS
All over the place like a mad women’s drawers!!
Written by
J1707-
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I hate this weather!
I feel like a big bloaty balloon from all the drinks I’m having to keep cool and hydrated. (I should add they are non alcoholic drinks. So far, anyhow! 😆)
I’m really not attractive at the moment well to be fair I’m rough looking all the time 😂😂
I’m sure that’s not true. 🩷 I’m floating around in long linen/cotton dresses covering my legs: That’s a good thing. 😆
I hate this weather too. I barely slept last night because every joint was aching, even the ones that had steroid injections on Tuesday. It also affects my breathing because I have severe asthma and ILD.
😢🩷
I've been so bad this year- more so than usual Aching all over , can't get comfortable in bed so can't sleep, little energy, short of breath (although I think heart failure recently added to the mix hasn't helped).I usually get mild to moderate hay fever but it's been really bad this year and has made my asthma worse.
Today is a bit cooler and less humid so I feel a bit better.
I hope for fresher weather soon to help your chest. 🩷
Thanks. I'm feeling a bit better today but still struggling if I go out for a walk 🐰
I’d say walk early evening, but it’s tending to be even warmer than the daytime at the mo! 😳
Yes that's odd. Hottest time used to be noon -3pmI tend to go out early morning if I'm awake🐰
I’ve noticed the last few years that it gets hotter around 5-8pm in the summer. My hubby loves a very early morning walk round the local country park before work, as he works from home mostly, but my knees don’t want to get up at 5.30am!
7am is the earliest I can manage ☺️🐰
I’d say the same! Mornings are still very slow!
Yes, very much 🐰
Not a chance if it doesn’t happen in the morning the evening I’m wrung out
I tend to run out of steam around 4pm.
I’ve run out of steam by the time I’ve got up, had a wash and got dressed. If I have a shower and wash my hair, I have to go back to bed. I just have no energy at all.
I’m like that at the moment
Is your RA under good control via RA medication? I felt like that in my early RA and when my meds failed me and RA crept in. My GP used to call it “unprovoked exhaustion”. Yup he was right. Just eating a sandwich used to tire me out. Hope you can soon feel less fatigued. 🙏
I’m like that at the moment. When everything was out of control I’d have to leave the table after the first bite as was too tied to chew and I’d lie down and sleep for hours . I’m still like that when things unsettled like with the weather bad with swelling worse when it goes down as peripheral neuropathy joins in
Do you feel your med is working well enough? I hope so but the heat can make you feel worse than your normal fatigue.
Just started a new drug 10 weeks ago . Initially fantastic but with this weather a real down turn . I will just have to see once this humidity settles how my body reacts. I hope it works this is drug no 9 I’m running out of options
Let’s hope this is a heat blip and you’re back on track soon. 🙏🩷
Hi Neonkittie. I don’t think it’s under control at all. I’ve been treated for nearly 20 years now, started on Celebrex by my GP first then once Rheumatology got hold of me, I started on all the usual (Methotrexate, Sulphasalazine, Hydroxychloroquine etc with Diclofenac, Etodolac. As I became intolerant to everything, the only thing that worked were the IM Depo-Medrone steroid injections. He tried me again on Metoject pens but I reacted to those too. Eventually, I went onto Benepali which I was hopeful for. Once they kicked in, I felt really ill and came out in a rash so was told to stop. Then my consultant of 20 years left and at my last appointment with a nurse I was told my new consultant couldn’t see me until October so I’d just have to wait. Like everyone else my joints are painful, swollen but because my fingers weren’t red, she wouldn’t give me a steroid injection. Instead, I was referred to a Pain Clinic (7th!), so have refused that. Talk about gobsmacked! My rheumatologist appointment has been brought forward so I go at the end of next week. I have other health conditions so at least I have painkillers. I’m afraid I’ve lost all confidence in the NHS and the privatised pain clinics.
I hope you’re doing OK. x
I’m with you on the hayfever making asthma worse!! Hate this weather too 🥵🥵🥵
I hear you J it's awful isn't it.
it incapacitates me too, very difficult to work, I just collapse and am good for nothing when I get home 😢
It really is very strange, I used to think it was the cold, damp weather that made my poor old body ache and that I would feel better when it was warmer - turns out I don’t! Well at least it means there is no point selling up and heading for warmer climes.
Well your post made me chuckle. 🤣 The title I mean!
My Irish grandmothers saying she had some great ones 😂
Made me laugh. We all surely need that!🤣
I'm nodding, laughing and wincing at the same time...I just love your simile, agree on the weather and feel your pain.
it’s great to share the misery 😂😂 best wishes to all suffers of the mad women drawers disease.
To top it all bloody HRT patch has a mission of it’s own just found it on my calf it took a trip from bum 😂😂
My patch is thinking of doing the same!
In the heat they do travel! My pain patch slides off in the night. 🤨
I like it warmer but not the humidity. We invested years ago in an air conditioner, it’s great! As dehumidifier too. And at night we open the loft hatch that really helps. We’ve now got the storm and my houseplants are out getting a shower, so far lightening but no thunder. This morning at the Medway Maritime Hospital the heat was awful. Over 27 and I felt ill just being there. How the staff work in that heat is amazing. My husband went outside to cool off !
Yes the humidity is awful. I love the sun and dry heat. Popped to my plot early evening thinking it would be cool...it was awful despite the rain.
Fat fingers, fat feet thanks to weather. Fortunately not much aches, thanks to steroids.
It would seem we are all suffering from the summer we have been waiting for - high pressure not good - best temperatures not more than 22 degs. Good excuse to wear the floatie kaftans to keep cool. 😁
Me too!
I wondered where they went 😁. The heat is making me an achy drippy misery and the humidity has done unthinkable things to my hair. It's turned into a curly mess a bit like a bad tempered cloud. As we're looking after my daughter's dog we now have two very flat dogs who get walked very early and a cross cat. Roll on normality.
It is not consistent is it. I wish it would stay warm and not have rain as well. I love the hot weather, but this mis match of weather is not good for anyone. xxxx
likewise, thank you everyone for posting I was beginning to worry that my meds had stopped working but feeling a bit less achy this morning… it’s amazing how the weather cause so much pain…..
I do believe it’s the humidity, rather than the heat. I get dreadful head sweats, and my naturally gentle waves, end up bass mass of curls, going in different directions. I wear hearing aids, so have been drying my hair 5-6 x a day. If anyone has a solution to head sweats I’m all ears. I’m told it’s partly due to low cortisol, as the heat and pains, burn through cortisol quicker, and because I don’t produce any, I have to remember to take extra steroids, which I probably hold off to long as I don’t like updosing. Roll on Autumn 🤪👍
At least you have hair. Mine is so fine and thin and is falling out. I suppose I’ll have to wait until I feel better and give in to the inevitable short cut 😭
Totally agree! The weather this year has really messed with my body! Humidity really makes my RA, Fibro and Myelopathy much worse! I’ve got to go to the hairdressers today, fortunately they have air conditioning . I bought a “cold pillow” insert for at night (a bit like the dog ones) and that helps a bit but it warms up after a few hours so I take it out. I have fans all over the house too. Roll on autumn, sorry to any sun lovers. 😮
Interesting can I ask what is a “cold pillow”
My ankles are a barometer for humidity 😂😂. But I wouldn’t swap this weather for anything as it doesn’t last long. I detest our six month long winters of short grey days and would love to live in Southern Europe if they paid for my biologics.
It’s a joy to have daylight early morning and enjoy the stillness of 5am
same here with this stupid Body of mine! The Change in weather hour to hour play’s havoc with my FMS/CFS & Menopause mixed in. This flipping rollercoaster never ends!
my ankles are weather prediction at the moment I feel like I’m melting and it’s a shame as I love the warmth of the sun 🌞
Sore and achy hands intermittently with my knees, had my first infliximab infusion on Tuesday so far no side effects 😀
Lovely flowers Sylvi xx
My ankles are so swollen and my skin really itchy. I do not cope in the sun but my OH loves it. He wants to eat every meal outdoors and I want to hide in a darkened room with a fan. 😎😂
ha, you made me smile, thank you xx
Best weather ever for me, stops feeling low and helps aches and pains.
😂😂😂🤣🤣🤣🤣 human barometers that we are
I also found last week that the side effects from my Methotrexate seemed worse and lasted longer as well
