To isolate or not

[Annemarie24]

I'm already isolating as started with a fever couple days ago, im geting very anxious waiting to see in im classed as high risk , I'm on hydroxychloroquine and steroids , it's very uncontrolled at the moment , befor i was diagnoised with r a i had a really bad immune system i catch everything and have them longer than normal people , has any one found out yet if we have to stay in for 12 weeks ?

[sylvi]

Annemarie i think you can safely say your in the high risk catergory darling.xxx

[Annemarie24 in reply to sylvi]

Thank you , I dont wanna risk it so will stay in untill i hear more I have a rheumo apoinmnet over the phone on Friday so hopfully il find more out

[Stayloose]

I hope you soon recover and that it isn't the virus. If you have the symptoms and continuous cough contact your GP early, don't wait until it's really bad.

[Annemarie24 in reply to Stayloose]

Thank you,

[Backy]

Hi, I would say you are in high risk category. Go to NRAS web site and follow link to NHS you will find a list of at risk categories. Main thing is not to panic.Im on MTX and Rituximab infusions so classed as high risk on NHS website. Stay safe.

[Mmrr]

According to the new information available, its steroids, biologics and small molecule drugs such as JAK inhibitors that make us high risk. So if you are on steroids, that puts inone of the higher risk groups, it will also depend on the dosage of your drug ?

But, you should stay home and clarify your situation with your rheumatologist on Friday.

[Annemarie24 in reply to Mmrr]

Thank you , I'm on 10 mg steroid only been on them 2 weeks, had an injection prior to that

[Mmrr in reply to Annemarie24]

I think 10 mgs puts you in a higher risk category. Dont worry, I am too. It just means we need to self isolate for now, but many of us do. Take care and let us know how Friday goes ?

[Annemarie24 in reply to Mmrr]

Thank you same to you , i will update once iv spoken to rheumo friday

[KittyJ]

🤞🏻you don’t have the virus and get better soon. This came out yesterday, I hope it helps.

rheumatology.org.uk/Portals...

[helixhelix]

According to that (link in post above) you are not at high risk, but if you are already unwell I think you should err on the cautious side and stay at home.

[Annemarie24 in reply to helixhelix]

Again its still not 100 percent clear as all it says about steroids is 10 mg a day for 4 weeks , does that include injections ? Does that mean if you are on steroids its ok? There's so many different links and different advice , I'm hopeing my rheumo nurse gets back to me today im trying to get pain meds my docters think paracetomal is enuff for rheumo pain

[helixhelix in reply to Annemarie24]

Oh absolutely you need to get advice from your own doctors!

And yes it is a nightmare at the moment with different bits of advice and things changing daily. But the critical thing to me is not to panic, but be calmly sensible about minimising your risk. So with an existing fever then you should stay put.

(They hydroxy does not seem to raise your risk, and the chart states that people who have taken steroids for over 4 weeks are at high risk, but doesn’t say anything about shorter timescales...)

[KittyJ in reply to Annemarie24]

Definitely talk to your doctors /nurses if you’re unclear, the chart won’t be clear for everyone. Your doctors will have your records so are best to advise you.

[allanah]

Stay in, stay safe xx

[Buckybri in reply to allanah]

When can we expect letters ? Is it this week ?

[allanah in reply to Buckybri]

Yes from tomorrow until Sunday, but if you feel you do or dong belong in thus group you can discuss with GP

[Buckybri in reply to allanah]

I think I am but never not sure until I receive the letter , for me it’s not if I’m high risk or not it’s so I can show the letter to my employer to just prove I am .

[allanah in reply to Buckybri]

Look on the list posted s couple of days ago by NRAS.org.uk

States RA is high risk , and the lost of meds again above from NRAS that say what group you are in. Xx good luck, get the feeling everyone on ludong employers will be in soon!!