Catching up!: It's been awhile since I have been here... - NRAS

NRAS

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Catching up!

Paisley58 profile image
10 Replies

It's been awhile since I have been here.

Wanted to thank everyone for their advice, help, suggestions and support it has been invaluable and I wish each and every one love, light, improved health no matter your condition and wonderful blessings.

My PIP application was successful, however, they have removed the mobility car component. thankful to be free of the stress.

Have had a hellish time with a R.A flare so bad I have been in and out of hospital for months. I have tennis elbow. Keep finding soft tissue bruising everywhere. Totally off food, total struggle to eat as everything taste metallic. Steriods, up the dose of the Leflunomide and painkillers. Monday went for a routine eye test, they found two tear at the back of my eye so was sent to Moorfields. They confirmed Specsavers find, waiting for a Retina Clinic appointment. It was a shock, as the Sarcoidosis is attacking my eye which I don't want, gutted, as reading and writing is everything to me; terrifed at the thought that I might loose my sight. I feel stupid panicking but I am but a good cry helps relieve some of the tension.

Have a great Sunday!

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Paisley58
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10 Replies
oldtimer profile image
oldtimer

Really sorry to hear that you have tears at the back of your eye. I know how I felt when I had one a couple of years ago. Fortunately mine has healed up and although the extra floaters from the small amount of blood released into the eye at the time are a nuisance, it hasn't affected my vision. I share you fear of loss of vision as reading is so important to me!

Paisley58 profile image
Paisley58 in reply to oldtimer

thank you so much, it gives me hope to know that there is a possibility that it can heal. The floaters drive me nuts, but the bright flashes are so sudden and frightening but I have been told that is due to the tears and they will stop once they heal, fingers crossed.

Your having a tough time I’m so sorry. I can understand your fears about loosing your sight please god they have found it on time and can treat it.

Good luck let’s us know how you get on.

Congratulations on getting pip very stressful

Paisley58 profile image
Paisley58 in reply to

thanks so much for your well wishes. off to Moorfields next month, retina clinic, fingers crossed they can get the eyes to heal as I am absolutely terrified. All I can do is hope and pray.

Sumdy profile image
Sumdy

Hope things start improving soon for you. Life can be so awful at times. Gentle hugs x

Paisley58 profile image
Paisley58 in reply to Sumdy

thanks

Stats12 profile image
Stats12

Congratulations on yr PIP success! You are going through a bad time.. I hope things settle down for you soon, big hugs 🥰

Paisley58 profile image
Paisley58 in reply to Stats12

truly appreciate this

hatshepsut profile image
hatshepsut

I do hope your eyes are sorted out quickly and successfully, I don't want to think how I would cope if my eyesight was threatened. Good luck with your treatment...........and congrats on getting PIP

Paisley58 profile image
Paisley58 in reply to hatshepsut

thanks so much for your response; will be off to Moorfields next month beyond that all I can do is hope I don't loose my sight.

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