Prednisone - so far so good

Well started last Tuesday small amount to try and get the flare under some form of control and though not perfect I have to say I have actually managed to do some basic stuff today and actually do not feel like a vegetable.

Also noted the hands have halved in size and pain better. I am just hoping I can get thro a week of work feeling like I do today, as this would be a lovely feeling compared to last week.

Thinking positive thoughts and I managed to get into a bath as I could bend the knees enough so a real treat insted of a shower for once. Simple things........now got Julie Andrews in head singing these are a few of my favourite things...

*a bath

*bend my knees

*get a top on with out yelping

*get a bra on without cussing

*walk from car to shops not lolloping badly

[regina79]

So glad to hear that lovely 🙏😘

Hope the relief carries on xx

[Jesnaskah]

Prednisone gave me my life back!

I'm glad you're feeling better😄

Just be careful... It causes weight gain... Stay away from fried, fatty, and salty foods... Unless you don't mind putting on some weight.

[Hidden in reply to Jesnaskah]

We have switched to fish only diet with lots of veggies and fruit and banned unhealthy things unless trest day at weekend or when just feel the need. Only doing 2 weeks initially then off as my local GP wants to check how I am then ideally leave off 2-3 weeks before I have another dose. Its short term relief till I see Consultant for first visit Sept.

[Jesnaskah in reply to Hidden]

I see. I hope your pain doesn't flare back.

I was on it for about a year and a half. I decided I'd rather be on this, then DMARDS or biologics.

It was a decision I came to bc I wasn't liking the experiences I was having with the other meds. I know it's not a popular one and my doctors ultimately didn't agree with me, but they allowed me to do what I wanted and eventually I began to taper 0.5mg as I felt I could. And since Nov 2018 I've been off.

Good for you with the diet! The only way I've been able to accomplish getting off meds (except LDN) was to cut out dairy and meat/chicken/pork. It's hard!! Especially bc I LOVE food but when I have just a taste of something with milk in it....I am reminded exactly why I need to stay away. So it's worth it for me.

But I can relate to everything you said in your above post. I was completely crippled. My husband was dressing me, and taking me to the restroom. It was a scary, dark time.

[TheBoys]

Hope the relief gets better and better. Take care.

[Hidden]

And make sure you protect you bone strength.

[pd118]

sports bra I love

[Hidden in reply to pd118]

Long story but I explained to closest friend I need a bra that does up at front. So from top of M&S escalator to me at bottom ' I've found the disabled bras you wanted' at the top of her voice! Could have killed her..........

[Jesnaskah in reply to Hidden]

Wow! Ruuuuude! 😅

[Hidden in reply to Jesnaskah]

Jules still shouts to me across a shop to wind me up do you need bras love......sshe gets the look to kill but known me far too long so we giggle instead x

[Hessie5]

Enjoy it while it last, hopefully forever. When I take prednisone I feel normal again - and longed for that feeling to last. 😌

I thought I needed to resort to it over the weekend - I ate dairy and a delicious gluten-free granola which was quite sweet.

As the evening progressed my body ached so bad, during the night I had to resort to taking paracetamol... Sunday morning when I awoke I was fed up and sobbed. 😢

I then ate fruit and veg for the rest of the day. Gently the all over body flare had gradually subsided, thank you God 🙏.

So no more cheese for me and the Granola I have left alone for now.

So glad you are having a good day!

[Hidden]

I had a cheese moment yesterday because sometimes you just HAVE TO...