On to the next... any experience with Xeljanz? - NRAS

NRAS

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On to the next... any experience with Xeljanz?

Rheumagal profile image
8 Replies

Well I’ve been through all of the dmards etc.. sulfasalazine was the last one and was a no go. My liver really doesn’t like any of them.

So on to the next.

After all my immunizations I will be starting Xeljanz/Tofinicib.

Anyone else taking this? My doctor is quite optimistic.

Thanks.

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Rheumagal profile image
Rheumagal
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8 Replies
janmary profile image
janmary

I started on this 2 weeks ago, ( first biologic I’ve been on)

So far no adverse effects- bit early to say how effective.

jacbub103 profile image
jacbub103 in reply tojanmary

I ve been on this drug for 7 months after trying all the normal first line drugs and having 2 knee replacements due to RA... and it has been life changing for me ,2 tablets a day , no more chilling meds down , free to travel again with no cool box ...... Happy Days 😃😃😃

janmary profile image
janmary in reply tojacbub103

Thanks for you encouraging reply. I’m feeling better already and hoping it’s not just coincidence !

oldtimer profile image
oldtimer

My sister is still on this as part of a trial, must be about eight years now. It has suited her very well. She has had some problems with her cholesterol going up, but otherwise seems very well with no side effects and good control of symptoms. She's doing a lot better than me anyway!

janmary profile image
janmary in reply tooldtimer

Thanks for the encouragement. My lovely rheumatology nurse was very positive and I think there’s an improvement already. Maybe it will prove to be the magic ticket!

Trumpgirl45 profile image
Trumpgirl45

This drug has made the difference like night and day. When I was diagnosed in 2011, I was unable to walk up a flight of steps. After being on Xeljanz for a couple of weeks, I won't say it wasn't difficult, but now I can walk up stairs.

Rheumagal profile image
Rheumagal

Thanks for all the feedback!

Rheumagal profile image
Rheumagal

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