Hello I’m new here having had a diagnosis of inflammatory arthritis in December. I had campylobacter food poisoning 18months ago which left me with reactive arthritis. Unfortunately it decided to stay with me and now I’ve a formal diagnosis. This has been hard to get my head around, still doing battle with myself, as I was a very active, busy woman who refused to slow down. As I’m learning you’ve no choice with this disease to slow your pace, hard when you work full time plus! Exercise has been very hit and miss due to continual flares.
Anyway the reason for my post is I’m 5 weeks in taking methotrexate tablets and having nasty gastric side effects. Taking Omeprazole and folic acid to help. The rhemey nurse has said I can have injections if this carries on. I have struggled with weight my whole life but am managing to maintain a healthy weight despite minimal exercise. At my routine blood test this week chatting with the health care assistant she remarked that I shouldn’t go on the injections as I would bloat out and get huge - very helpful I hear you saying!! I’ve noticed some bloating with the tablets but nothing too bad. Can anyone tell me if you are more likely or do gain weight as a result of methotrexate injections please? I did when they gave me steroids but that is expected. Help and reassurance would be gratefully received.
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CurlySuzie
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Oh for heaven's sake! I'm sorry but it makes me angry when people trot out comments like that when they have no basis to do so. Amd they really don't think what affect it might have. Please don't listen to this care worker, but talk to your nurse. Presumably once someone she was a carer for gained weight so she/he now assumes this is a fact.
Well it's not true. If anything once I was settled on MTX injections I lost weight as I was able to resume normal activity levels.
Thank you so much for taking the time to reply, it’s really helped I will taught to the rheumy nurse.
Another little gem.....when I saw her for the first blood test she said I was far too young to be taking this, awful drug and did I know of the side effects!!!! It certainly doesn’t help when it feels so tough anyway
If you are of childbearing age then the nurse should have talked to you about the importance of contraception. But apart from that your age has no relevance!
I'm not normally one to complain but I think her manager could do with knowing what she's up to. She has no right and I suspect no qualifications to be discussing medication choices. x
I think health care assistants are a bit like Dr receptionist - not that bright ! Listen only to those who know - injections are excellent ( if an injection can be ) its the same stuff as the tablets but misses out passing through your stomach so you dont feel ill - also its not really an injection its a pen - so very easy to use - good luck x ps there are videos to watch of peoples experiences with RA and medication they take and what works best - they were very good -I think i accessed them through NRAS x
Hi I started on the methotrexate tablets in December but only managed 2 doses of them. I was so sick and lost a stone. Anyway started taking methotrexate injections 4 weeks ago and so far so good! Feel ok and other than a bit of indigestion for a hours the day I take it its been fine, (fingers crossed!!). So for me, it was certainly worth swapping.
That’s good to hear Dobcross. Had two doses of the tablets and felt awful each time. Start the injections next week so hopefully the side effects won’t be too bad!
Can't add a lot to what's already been said. Just remember that you are the boss when it comes to your condition and it's treatment. Only take advice from trained people and reliable sources such as NRAS. If you are well informed, you also help your care team. All the very best.
I find the injections better on not causing nausea it hasn't resulted in bloating so I think she is giving you bad advice. Go for the injection and talk to RA nurse . Xx
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