Please can I just remind people to be mindful of not asking questions that request medical advice. Whilst we are happy for people to share experiences of symptoms/side effects etc, medical questions/advice should be directed at the individual's healthcare team, as it puts other forum users in a difficult position and can lead to people giving what could be deemed medical advice, which can of course be dangerous, especially without knowing the full facts.
(EDITED - examples added to post for clarity):
"Just up your steroids, that should reduce the swelling" would be medical advice, and could be very dangerous. However, you could say:
"I went through something similar, and my rheumatologist upped my steroids, which seemed to help. Maybe give them a call and see if they are happy for you to do that?"
It's a simple change of wording, but it makes a big difference. Also, some people go on the forum asking questions that are asking for medical advice. For example:
"I forgot to take my medication today, is it okay to double the dose today?" This would be an inappropriate question, as people may answer with a yes or no, based on what they are able to do, without knowing how different this person's situation might be. We therefore discourage both medical questions and medical advice.
If you notice anyone asking for or giving medical advice, please report this for the admins to look into. Reporting doesn't mean someone is automatically in trouble, it is just a way of alerting us to any concern in a particular post or comment.