Hi all,
I’m new. And I’m despairing. I’ve been ill for 19 days. 18 of those also includes a horrible rash. Started on my left, a week later my right side erupted too. They look like hives and itch horribly. In my sleep I’ve been scratching. Wake up to a wet neck from fluid of the blister? Although it’s one continuous blister I guess. Been on orencia infusions for 18 mos. the illness and rash followed a Christmas party. I was afraid to go to because every time I socialize I catch an infection. Lethargic, dry cough, mucous cough, chills and this god awful rash that makes me want to perform my own surgery. Got into a emergency dermatology appt. for tomorrow. For now, has anyone else experienced these fluid filled hives? I don’t want to sound vain but thank god my hair covers the rash thing. It’s so awful. It is severely interfering with my sleep because it itches so badly. Anyone experience something similar? Worst Christmas and New Year. And yup, I’m feeling sorry for myself. My RA is actually under control and I am considered “low disease activity” as a result of orencia. CRP score is a 6. Hence the “almost cured” but won’t be if I stop my orencia. TIA. Gentle Hugs.
That sounds nasty. I'm sorry, no advice, but glad you are seeing someone tomorrow. Let us know how you are.
I did have something similar that flared up after a drug I was taking (can't remember which). It started off as blisters then turned to crust. No one could tell me what it was.
Sorry to be useless.
It helps to know I’m not alone. Broken down for a total of 5 hrs of sleep snatched here and there no wonder I can’t fight this thing.
Oh poor you. Lack of sleep is awful. I hope the appointment shed some light on it. I suppose you talked to rheumatologist?
The appt is tomorrow but no I haven’t talked to my rheum yet. She’s not that helpful. It’s my nephrologist whose getting me in so quickly to all these other drs. Thank god for her!
Pleased to hear it. Blistering skin is never good.