I was diagnosed with RA in 2006 and later Fibromyalgia. Since then I've been on Sulfasalazine, MTX orally, Hydroxychloroquine, MTX subcutaneously, steroid injections. At the beginning of the year I was so bad I could hardly move, I was put on 4 months of Prednisone, and started on 50mg Benepali - which I was fine with. No problems with side affects, no problems at injection site. Everything started to ease then I had swelling in my gums and lips, and was told to stop the Benepali as the swelling was the start of an anaphylactic shock! It didn't feel like to me.
So I stopped taking it. That was the end of June. I waited for an emergency appointment from my specialist which was the beginning of September - who was new but who had the same surname as my old Specialist, but he seemed to be saying it wasn't RA it was Fibromyalgia, and he wrote to my Dr for higher pain meds to change brain signals, and said he was discharging me. Now I am on 2700mg of Gabapentin, 600mg Tramadol, 50mg Amitriptyline, 1000mg Naproxen and up to 6000mg of Paracetamol a day. I don't know whether I'm coming or going and I very rarely go out. If I do go out, I have to take a few less tablets a day or so before to be fully aware, then the pain worsens and I suffer from withdrawal symptoms!
So I emailed the Specialist (or a family member emailed on my behalf) asking how I could be on Prednisone and 50mg Benepali in June and nothing after that - and be diagnosed with RA for 12 years and constantly on medication for all of those 12 years, and then be told at the drop of the hat it isn't RA it's Fibromyalgia? He didn't reply. So I emailed again saying I had all my diagnosis letters and medication results, this time I was told he was away, and would reply when he got back. He didn't reply, but I got an appointment for last week. When I saw him, he seemed to me to be back-tracking. He apologised for saying I didn't have RA - he said he hadn't seen me in the past so couldn't diagnose RA however he stuck to his diagnosis of Fibro, so didn't give me any RA meds however, this time he said he would keep me on their list in case I should need to go back?!
So now I am at a loss for what to do next? I feel completely let down, I'm in pain, I don't know what's wrong with me, and in all honesty I'm beginning to feel what's the point of being here! I just want to know what is really wrong with me, and I just want the pain to go away.