Great song by the New Seekers. Wish someone would teach the world about RA! How many of you feel worn out trying to explain to some people in our family/social circle etc that we just feel rubbish, exhausted and in pain sometimes. I find it draining because they forget so quickly! For some, what you can't see doesn't exist. Very frustrating indeed! Not everyone has understanding people around and that makes this disease harder to live with. So any songwriters out there? The world needs some RA education and what better way to get that across than in words of a song. Oh, we need some musicians too! Haha X. "In Perfect Harmony....."
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Shalf
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No fuming angry or p##d off, I don’t give a dam because when I do say I have it and the same when I tell them about my dementia, they oh I think I’ve got that, oh really how do these things effect you, I usually laugh at them because most don’t have a clue lol and they do sound stupid.
I am exhausted trying to explain it all to ignorant people. It seems no matter how you try to explain it, that they are determined not to understand. The usual remarks are "But you look well" or "We all get aches and pains as we get older" I am so low with it just now and long for people to be more understanding or at least to listen to what I am saying. The horrible remarks I have had from people take a lot of understanding. One person who I thought was a friend put the following on my facebook page; "Will you ever stop whinging about your aches and pains? I have a friend who has just died of cancer and that is a real illness". That remark upset me for weeks. Another friend wrote that I couldn't be very ill because I still went on holidays. I didn't know that being ill meant that you had to give up holidays and live like a hermit. In actual fact, I really struggle with holidays and wonder how much longer I will be able to cope with them. I know I am extra sensitive, but I would never be so unkind to anyone and can't understand why people are like that.
Hi Holly, Everyone here understands. Maybe you could write a poem and post it on here and on your Facebook? Expressing feelings will make you feel better and may teach other's how to respect people living with RA and it's many symptoms! X
Thank you Shalf. It is a good idea but I am afraid I am no good at writing poems. However, I will look out for one that expresses my feelings and if I come across one, I will put it on my facebook page. Thank you for understanding. xx
I wake up in the morning, I wake up at night. I am in a fighting mode, what a delight. My aim is to protect but I sense a little fear, danger danger is ALWAYS near. My army is ready to do all we can, we are mighty and strong no flash in the pan. Danger danger there is a threat in sight, call on the force and turn off the light! It won't be hard as there's water at the scene, we must attack and never be seen. The area is large but there are little things, the place we want to go is where they were their rings. Full attack we steam ahead, we won't stop until it's gone to bed. Our enemies are waiting so patiently, we cannot halt for eternity. The fire is burning so intensely now, our job is done let's take a bow. We leave until the next time for that is very soon our enemy is weak let's take another peak. Our bodies are hot and in burning we inflame, it's war on the enemy it's no game. We must protect there's no mistake, these little joints we all must take. - To be continued......
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and what better way to get that across than in words of a song. Oh, we need some musicians too! Haha X. "In Perfect Harmony....."
Thank you
how many people do you know ??
Suffering inside
Article i found on loneliness and isolation.
Update on worst flare ever
