" I'd like to teach the world to sing"....: Great song... - NRAS

NRAS

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" I'd like to teach the world to sing"....

Shalf profile image
23 Replies

Great song by the New Seekers. Wish someone would teach the world about RA! How many of you feel worn out trying to explain to some people in our family/social circle etc that we just feel rubbish, exhausted and in pain sometimes. I find it draining because they forget so quickly! For some, what you can't see doesn't exist. Very frustrating indeed! Not everyone has understanding people around and that makes this disease harder to live with. So any songwriters out there? The world needs some RA education :) and what better way to get that across than in words of a song. Oh, we need some musicians too! Haha X. "In Perfect Harmony....."

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Shalf profile image
Shalf
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23 Replies
keeta profile image
keeta

Or a poet .

Come on lets see what we can come up with . Hugs to you all x kathy xx

Shalf profile image
Shalf in reply tokeeta

Great idea! - Poems, Songs, the way to be heard and understood.

Philip profile image
Philip

No fuming angry or p##d off, I don’t give a dam because when I do say I have it and the same when I tell them about my dementia, they oh I think I’ve got that, oh really how do these things effect you, I usually laugh at them because most don’t have a clue lol and they do sound stupid.

Shalf profile image
Shalf in reply toPhilip

Maybe a poem or a song would put things straight Philip, what do you think?

Philip profile image
Philip in reply toShalf

Absolutely my friend.

Tinatop78 profile image
Tinatop78

Brill idea!xx

Fatfingers profile image
Fatfingers

Lying in bed, awake in the night,

Hoping to sleep but joints are so tight,

Fingers and hands and ankles and toes,

Where the pain will hit next I don't know.

Fall asleep at last when the drugs do their thing,

Wake up in the morning but long gone is the spring,

Of younger days & better times, of a previous life we had,,

Now we rise so slowly when things are getting bad.

We shuffle and we struggle,

And sometimes feel okay,

And sometimes we look "normal"

If we're having a good day

There are days when we want to scream & shout & sometimes want to cry,

And other times just sit alone and wonder why oh why.

To be continued maybe....

Smiler53 profile image
Smiler53 in reply toFatfingers

Brilliant!

Shalf profile image
Shalf in reply toFatfingers

Very good! :) Poetry is an excellent way to express and to heal. Gain power and strength. Today I will think of one....

keeta profile image
keeta in reply toFatfingers

Love it xxkathy xx

Mmrr profile image
Mmrr

Smiling is infectious

You catch it like the flu

When someone smiled at me today

I started smiling too

I walked around the corner

And someone saw me grin

When he smiled I realised

I had passed it onto him

I thought about the smile

And then realised it's worth

A single smile like mine

Could travel round the earth

So if you feel a smile begin

Don't leave it undetected

Start an epidemic

And get the world infected

By Spike Milligan

keeta profile image
keeta in reply toMmrr

Thats a winner and so right xxkathyxx

Shalf profile image
Shalf in reply toMmrr

Start an epidemic....... GO!

Shalf profile image
Shalf in reply toShalf

Is that even the right word???😕

Shalf profile image
Shalf in reply toShalf

You know what I mean! 🤣

I am exhausted trying to explain it all to ignorant people. It seems no matter how you try to explain it, that they are determined not to understand. The usual remarks are "But you look well" or "We all get aches and pains as we get older" I am so low with it just now and long for people to be more understanding or at least to listen to what I am saying. The horrible remarks I have had from people take a lot of understanding. One person who I thought was a friend put the following on my facebook page; "Will you ever stop whinging about your aches and pains? I have a friend who has just died of cancer and that is a real illness". That remark upset me for weeks. Another friend wrote that I couldn't be very ill because I still went on holidays. I didn't know that being ill meant that you had to give up holidays and live like a hermit. In actual fact, I really struggle with holidays and wonder how much longer I will be able to cope with them. I know I am extra sensitive, but I would never be so unkind to anyone and can't understand why people are like that.

Shalf profile image
Shalf in reply to

Hi Holly, Everyone here understands. Maybe you could write a poem and post it on here and on your Facebook? Expressing feelings will make you feel better and may teach other's how to respect people living with RA and it's many symptoms! X

Thank you Shalf. It is a good idea but I am afraid I am no good at writing poems. However, I will look out for one that expresses my feelings and if I come across one, I will put it on my facebook page. Thank you for understanding. xx

Shalf profile image
Shalf in reply to

I've NEVER wrote a poem but going to try! No laughing now 😉 X

Shalf profile image
Shalf

Mr Rheumatoid and his army!

I wake up in the morning, I wake up at night. I am in a fighting mode, what a delight. My aim is to protect but I sense a little fear, danger danger is ALWAYS near. My army is ready to do all we can, we are mighty and strong no flash in the pan. Danger danger there is a threat in sight, call on the force and turn off the light! It won't be hard as there's water at the scene, we must attack and never be seen. The area is large but there are little things, the place we want to go is where they were their rings. Full attack we steam ahead, we won't stop until it's gone to bed. Our enemies are waiting so patiently, we cannot halt for eternity. The fire is burning so intensely now, our job is done let's take a bow. We leave until the next time for that is very soon our enemy is weak let's take another peak. Our bodies are hot and in burning we inflame, it's war on the enemy it's no game. We must protect there's no mistake, these little joints we all must take. - To be continued......

Fatfingers profile image
Fatfingers in reply toShalf

Top work x

keeta profile image
keeta in reply toShalf

Well thought out love it xxkathyxx

Tinatop78 profile image
Tinatop78

I enjoyed that! 😊

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