Hello, I was diagnosed with Sjogren Syndrome a few years back which means dry eyes, dry mouth, fatigue etc.
In Feb 2017 something hit me which seemed like a bad cold - achy bones, extreme fatigue, I could hardly get out of bed. I still managed to go to work but was struggling terribly. My GP prescribed me Prednisolone 20mg daily which helped straight away and I thought I was cured. He referred me to Rheumatologist but didn't see him until end June 2017. He confirmed I have RA but he needed to do some tests to be sure. He said my Sjogren is secondary - from RA.
I was due to go on holiday early August and he said, he'll start me on MTX 15mg and Folic Acid 6 days p/wk, as my hair was falling out bad, when I came back.
I started MTX but was making me very sick for the next 3 mths. I switched to Injection and bear in mind I was still taking Steroids 5-10mg p/day. The Rheumy doc tried to take me off the Steroids a few times but every time I went to 5mg p/day my stiffness and swelling gone worse and they had to increase again.. I went on 20mg MTX in Jan 18 and it is now May 18, still on Steroids and still struggling!
I am coming off Steroids/Prednisolone and managed to get to 3mg p/day but started swelling up and had to work from home a few times as wasn't able to get up.
I am now down to 1mg of Prednisolone and can hardly move . I rang Rheumy nurse a few times but they just keep saying I'll have to increase the Prednisolone again. I am due to see the nurse this Wednesday 9th May.
Shouldn't they try to switch to some other med as I've been on the MTX for 8 months and not helping?
I read, one should only stay on Prednisolone for a few weeks where I've been on it for over a year. My moods are sooo bad and I feel very down and negative all the time. My face looks like a balloon and it's so frustrating as my diet couldn't be better.
Any help will be much appreciated.