Hi all, I have not blogged on here for a while so thought I would give it another try. Hope you are feeling as well as can be expected.
I have been on 20mg of MTX by tablets since diagnosis last Oct. It is unfortunately not working. 8 days ago I could not stand it any longer so I rang my helpline and they spoke to a rheumy and increased my pred. Now originally I was on pred for PMR (polymyalgia rhuematica) but I know some RA patients also have pred. I have been struggling to reduce this even with taking the MTX but have tried in vane to do so. I got down to 12mg but now back up to 15mg which has gave some relief. The nurse on the helpline was getting in touch with my own nurse to see if something else could be added to the MTX but like I said that was 8 days ago and I have heard nothing. I assume I have to wait for my next appointment in March.
I think the cold weather is also affecting me as my ankles and toes are agony. My legs hurt in general but not sure why this is and my neck and shoulders are swollen again. Some days my hands are fine but mostly my wrists and fingers are very painful.
I am in two minds weather to look into a hand splint to help relax them overnight. As anyone else got these?
Last night the fatigue set in big time and I went to bed at 7.45pm even before my 7yr old which she thought was funny. Needless to say I have not slept the whole night getting up twice to the loo and generally being in pain with my legs mostly so could not settle.
I am going to take it easy today agini and see how I go. Might have to ring the helpline again as they told me to if not much relief and they would increase the pred to 20mg. I really want off the pred and rid of this moon face On the plus side one of my BP meds has been changed as one was making me have water retention so the new tabs are for BP and water and I have lost 6lb in a week and my feet are no longer swollen.
Gentle hugs and keep smiling