Saw the rheumy nurse today. The upshot is, to reduce the sickness and diarrhoea that I am experiencing, she suggested I go onto Injectable mtx. I agreed as at the moment my down time is 3.5 days after taking mtx, which for me is on a saturday. I still am suffering from loose stools.
I agreed to increase to 20mg mtx injectable, which will start after the training classes and to reduce my steroids 1mg a wk from 10, once I start the injectable mtx. Consultant feels I will need to increase initailly to compensate for the reduction in steroids.
My das score has come down from 6.3 to 3.63, but rheumy did not know how much steroids had contributed to the score, because steroids masks the symnptoms. I still have joint tenderness in hands/wrists and my hands are still producing heat.
I am to increase folic acid to 3x5mg a week, until I start injectable, then reduce back down to 5mg. To try and tackle the sickness I am experiencing now.
Forgot to ask, but do you still have to inject after when you have eaten or can you do it any time of a day???
I am anxious about injecting, disappointed that I can't still keep my little miracles, but hopeful that the sickness will disappear - eventually sometime in the new year. To be honest I never thought I would be offered it and I was not going to ask for it, although I had been researching it the last couple of evenings. Was undecided about it.
Not looking forward to more hair loss due to mtx increase again. But I have an appt in Jan, to cut hair short again, due to the continued hair loss every time I increase mtx. It's a fallacy that its only hair thinning, some peps loose alot more, rheumy nurse confessed today. As my hair loss only happens due to the increases and then settles and stops, I am hoping, that in time it will regrow as I continue to get use to mtx.
Well I have all my boys home now (son has arrived back home from uni, yesterday). Hubby has finished work for the christmas, so I am looking forward and excited about the festive season.
I wish you a merry chrimbo and a happy new year. Here's hoping a pain free or much reduced time.
Thanks for all your adive and support this yr
Ooh, my other good news is that I am now on once a month obs - yippeee!