Hi, I have had RA for about 12 years now. Started on Sulphasalazine - made me sickly. Then onto MTX tablets which made me sickly for 5-6 days a week unfortunately, I had an old Dr who said I had to put up with it so I did for about 7 years. I was at the point, where I couldn't do it anymore when I was given a new Dr. He said it was totally unacceptable because yes there were side effects to the medication however, it was about getting the right balance to enable a decent quality of life. He cut down the dose and added Hydroxychloroquine - which worked for a while. Since then I've been on MTX injection - worked for a while, and then Leflunomide - which made me lose weight (I saw this as a bonus lol) but put my blood pressure through the roof. So now I am about to be put on Benepali however, in the meantime I am on Prednisone, Gabapentin, Tramadol, Amitryptaline, Adcal-D3, Naproxen, Paracetamol & Omeprazole.
One day last week, I was watching my Adult children interact laughingly with my grandchildren, when I suddenly thought 'I used to laugh like that'! In all honestly I can't remember the last time my life was pain free enough to just be carefree enough to laugh wholeheartedly, or interact fully with my family - I always seem stressed or in too much pain.
I am sure many on here are on much more medication and even worse than I am, but I want to be around to watch my Grandchildren grow up, and with all the medication we take whilst it helps one condition, it appears to promote others!
My Son has done lots of research on my behalf, and my family keep asking me to try it, but I am too scared in case it interacts with anything, but I would happily stop a lot of medication if I knew it wouldn't interact or might work especially if it doesn't have the debilitating side effects.