CBD oil: Hi , my rheumatologist has taken me off my... - NRAS

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CBD oil

jools34
jools34
25 Replies

Hi , my rheumatologist has taken me off my Cimzia injections, no idea why . I've been loads better on it.So I was thinking about buying CBD cannabis oil , has anyone else tried it, and has it worked for you ? I'll try anything if it helps.

Thank you

25 Replies
oldestnewest
Ruffles13

Yes also heard this helps, would like to know anyone as well on results of taking CB oil

5 likes
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Thegreywitch

I brought soom from Holland and barest, it tasted disgusting. I couldn't use it, but if you can get over the taste maybe it's ok. I thought of having some mints ready to disguise the taste.

1 like
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oldtimer

You need to know why you have been taken off the Cimzia injections. And what your consultant has in mind for your future management. Ask until you have an answer!

2 likes
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jools34
jools34
in reply to oldtimer

I know , I have phoned on Wednesday and left a message, it said they will get back to me in a few days . So I'm still waiting, I'll let you know if anything changes .

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Simba1992
Simba1992
in reply to jools34

How frustrating😡

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Katie6221

Hello jools34!

I actually moved to the Netherlands this past August. I was diagnosed with RA shortly after coming here, so having all of these tools within my reach, I've done a lot of research on the effects of CBD and inflammation and pain.

Good news! There are many studies that confirm the anti-inflammatory nature of CBD. Additionally, many people with RA experience relief from pain while using CBD in some form. (There are topical oils, tinctures which are oral, smoking or vaporizing, and capsules, though I'm not sure how easy this is to obtain in other countries)

Like all natural remedies, it's important to remember that this will take time. Results will not be overnight. It can take weeks to months for CBD to impact inflammation. It's also important to ensure that whichever form you choose to use is pure, of good quality and preferably organic, if you'll be using it orally.

If you are in a place where it is legal to smoke cannabis (and you of course are comfortable with using this substance), there are many strains that I have personally found to be very effective and sometimes day-saving for me.

4 likes
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nomoreheels

I agree with oldtimer, before you do anything you really need to know why you've been taken off Cimzia. They shouldn't just stop an anti-TNF & not discuss why or talk through your replacement options. For goodness sake there's a reason you've needed it & it's not gone away. It makes you wonder why change your treatment if it's been working for you? It does annoy me when patients aren't informed what's happening re their treatment so I hope you receive answers soon as to where you go from here.

2 likes
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jools34
jools34
in reply to nomoreheels

I been expecting my next delivery of cimzia, so I rang healthcare at home , and they said they have not had a prescription from the hospital. I was at the rheumatology dept last month, and he never mentioned anything about stopping me on it . So I've no idea why, phoned hospital on Wednesday and still waiting for reply !!

1 like
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nomoreheels
nomoreheels
in reply to jools34

I wonder if it's an admin error, someone's forgotten to press the button to send the script or, & more likely as HAH do have a certain reputation, they've 'mislaid' it. If you don't hear back from your team on Monday if you can I'd be tempted to go to the department & ask the question, they can't ignore you like they can a TAM.

I hope it's a mistake & you receive it soon seeing as it works for you. x

1 like
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Gigi71
Gigi71
in reply to jools34

I had that happen to me with HAH a couple of years ago, the person at my hospital was on holiday and whoever was 'doing her job' was way behind. Plus HAH was having major problems at the time. Just keep on at the hospital, maybe someone off sick. Stay with it. Good luck x

1 like
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Rahelp
Rahelp
in reply to jools34

Hi this happened to me I was with our my medication for 6 weeks before it got sorted. My GP got the Rheumy sex to sort it the first time. I then got a delivery of 3 months mess. However when my next delivery was due it started again. Fortunately I had an appointment at the clinic and brought it up with the nurse. Who sorted it properly. It was a Mix up but I could not get any where with it. Even the Rheumy sex was saying I had to phone here there and everywhere. but no one wanted to know or help. Its an immpossible position to be in so dont waste time go straight to your ra nurse and explain what has happened it is the only way it will get sorted from my experience. Good luck

2 likes
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Richgirl

Hello Jools, I have tried CBD Cannabis oil under the tounge. Thegraywitch is right. The taste is very yucky. But I did it in desperation. Great idea about the mints. I'll have to try that. CBD works pretty great. I did mine at night. Made me able to sleep all night long. Less pain. I can't afford it all the time. But when I have the funds I get it. Hope this helps. Richgirl🌻

3 likes
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linziej
linziej
in reply to Richgirl

Hi Richgirl

Would you mind telling me where I could buy CBD oil.

Thank you very much

2 likes
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Richgirl
Richgirl
in reply to linziej

Hello Linzie, it depends on where your living. I live in The United States in Santa Barbara California. They have people here that make it in oil form with just the CBD part so u don't get the THC part that makes you high. Out here they call this Medical Marijauna & I went to a special doctor to get a paper saying I can go buy CBD oil. The paper cost me $50. But every year I have to renew it. Then I go buy the CBD oil at a distributors showing them that paper that proves I can buy it. I would suggest that u research where to buy Cannabis on the internet in your area. I wouldn't buy it from anyone off the street. You wouldn't know what you were getting. Not safe. Here they have reputable distributors that make it in to CBD oils. That's what u want to find. What part of the country are u living? I hope this helps you. Let me know if u were able to locate a place. Richgirl🌻

1 like
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linziej
linziej
in reply to Richgirl

Hi

I live in Scotland in the UK.

I have been looking online but difficult to know who is reputable. Also what strength do you start at?

1 like
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Richgirl
Richgirl
in reply to linziej

I just started with one drop. Now I'm doing 2 drops. U can start with what u want. Everyone's different. But because of finances I needed to know how little I could use & still have it work. Putting it under the tounge insures that it gets into your system & does what it's suppose to. U just allow the drops to remain under the tounge until it dissolves. I'm not sure about how u would know who's reputable where u live. The questions I would ask is if they make sure there's no mold & that they don't use pesticides on there plants. Good luck & I hope u can get it there. Richgirl🌻

1 like
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linziej
linziej
in reply to Richgirl

Thank you. What strength did you start off with. There seems to be 1% 3% etc. Thank you for your advice.

1 like
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Richgirl
Richgirl
in reply to linziej

I'm not really sure how they measure it. All I know is by drops. Also I forgot to mention that when I gave up All wheat, sugars, dairy & prossessed foods It helped so very much too. 🌻

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jools34
jools34
in reply to linziej

I've seen it in Holland and Barrett online .

1 like
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linziej
linziej
in reply to jools34

Ok, Thank you. I will go on and have a look.

Thanks

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jools34

Thank you for all your replies, I give the hospital till Monday to see if they can sort it out, and I'll let you know what happens , I think the stress is making me worse. 😰 X

3 likes
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Gigi71
Gigi71
in reply to jools34

Just a thought are you up to date with your blood tests. That can hold things up. X

1 like
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jools34
jools34
in reply to Gigi71

Yes I think I am. I was at my appointment only last month, and he never mentioned anything about taking me off at all.

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Gigi71
Gigi71
in reply to jools34

Get on to the hospital rheumatology helpline to send the script to HAH, it sounds like they have overlooked it, otherwise you would have been told they were going to stop it. Especially if it's working for you. Good luck. X

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jools34

Hi everyone thanks for all the comments , I finally got a delivery on Tuesday morning, after phoning hospital, all they said was , they have sent the prescription in and I should get a delivery soon, !! No apology at all. Sorry for late reply but with all the stress I've been ill and in bed a lot . Hopefully I'll start to feel better soon .

1 like
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