Well spring is on its way,but as yet i don't feel it!!!.....

[sylvi]

Yes spring is heading our way,how you ask do i know,well the shortest day was the 21st December that means the day will now be starting to get longer so that is good yes?

Mind you i can't feel it. I have got one snowdrop in my front garden.

I wish i felt it. I am keeping a diary of how i feel during the day and evening. I get up feeling bright enough in myself,even if my body disagrees. I saw the dr yesterday and she is reffering me back to the surgeon who did my right knee the second time,for a check up as my knee doesn't feel right,i am hoping the knee is safe and sound,but it is so swollen and sore at times. I hope it is not related to my RA. As to the rest of my body i have to contact my RA team and the surgeon who did my back. She did listen to me and gave me some more naproxen when my pain is bad.

Overall i just don't feel right,this is ever since i had the pneumonia. Nothing i can put my finger on and since the seizure i felt very strange, quick tempered so quick tempered it is scary,no i am not violent. I find i am also more weepy than usual. I know i am depressed and the duloxitine is given to me for that among its other uses. My fingers hurt and to me swollen. I am finding the only place i can get comfy and feel brighter is in my bed which is worrying,but all i feel(and this is me ) is i am told well your chronically ill(what can you expect,thats not what is said,but how i perceive it) My appts. have come through since the seizure and they are 25th/26th of this month two of them on the same day and ten minutes apart in the same dept. the next one day in the same dept. So i am hoping when they get the results in from them they will let me drive again.

Well that story is finished and i hope your all feeling bright enough(i never use better as we will never be better). Hugs to you all.xxxxx

My daughter doing her usual pose when i have my camera in my hands. lol

[sylvi]

She makes me laugh doing that all the time. She is a standard bearer for our British legion branch and apart from when she is marching she will always stick her tongue out at me.lol.xxxx

[sylvi]

Which legion do you belong to then darling.xx

[sylvi]

Well no she will never get to meet you sadly as you would love her,she has a attitude thats for sure. She goes on parade at the Birmingham tattoo in December and the people she meets is unbelievable.xxx

[Hidden]

Hi Sylvi

So sorry to read about your struggles. Yes, longer days will soon be back! It is usually the end of January before I feel more bright in myself though, even before chronic illness.

We do have to remember that even when the illness is suppressed it is still putting extra pressure on the body and mind, as are the drug ‘therapies’ we have to use. So adequate rest and relaxation are more important than before RA.

It seems you have battled a long time and bear the scars, not just physically though plenty of those! Well done.

I hope you receive positive news and appropriate treatment quickly. All the best for your appointments etc.

xx

[sylvi in reply to Hidden]

Thank you for your lovely words,i always feel brighter when the sun shines even if it is cold. I love spring and early summer the best. As a chronically ill lady yourself you know all about the struggle we have to endure. Hugs lovely lady.xxxx

[Hidden in reply to sylvi]

I must be feeling vulnerable today for that brought tears to my eyes!

Onward, must post my younger daughter in law’s birthday card so she gets it before her birthday on Sunday.

Out with the raincoat (wool liner zipped in) and brave the showers!

Gentle hugs back, xx

[sylvi in reply to Hidden]

Enjoy the fresh air darling and i hope it blows the cobwebs away.xxxx

[Hidden in reply to sylvi]

It did. Went into another flare on Christmas Day. Been utterly exhausted since!

Bed is my friend, need it 12 hours a day at present. Dragged myself out for a ten minute bus trip to a centre nearby so I could look round Matalan and TK Maxx. Set of more pain for today.

Oh well, rest can only do good!

Take care, keep us updated with news of your appointments. xx

[sylvi in reply to Hidden]

I am in so much pain today i could scream the roof off. My back and right knee i could dry i am that damn sore.xxxx

[Hidden in reply to sylvi]

Guess we all know how appalling and excruciating RA xcan be even though promises might be given by well intentioned, kind professionals, that it won’t be allowed to become that bad.

I got CBD oil and it helps but still have to wait an hour or two before I can dress myself. Not been able to properly clean my teeth either.

Nobody would volunteer for this!

I hope you get some relief soon. Xx

[sylvi in reply to Hidden]

I am going to take a naproxen now for the pain and see how that goes.xxxx

[miss]

Chin up lovely. Love me. X

[sylvi in reply to miss]

Thank you my darling,i have never felt this bad in 15yrs of having these diseases.Today doesn't look any better.xxxx

[LizzieR]

I'm sorry you are feeling so bad lovely Sylvi. Hang in there- if snow drops are here then Spring will arrive soon. Xx

PS could it be the drugs making you weepy/ angry etc? Pain killers, as you know, can have horrendous side effects psychologically for some people

Xx

[Ruth12345]

Dear Sylvi, I am so sorry to read of no improvement for you. How lovely to have that fun cheeky relationship with your daughter. very precious. Its these times when we need to hang on to those things that we have, like a lovely relatiionship with family and friends. Let others 'carry' you at this time. Sorry no pics of my daughter and baby, its a bit sensitive due to previoys experience in family and pics put out there. Maybe in time. My daughter has dipped and seeing gp today. But anyway chinup for you my dear and lets just presume this is a blip and will get sorted. Easy for me to say as you are living it. All I can say is thinking of you and we all care.