Been diagnosed with RA just over a year but I had symptoms for at least 2 years previously. 4 years ago had diagnosis of underactive thyroid and docs made me believe all symptoms were due to that.
The RA is everywhere, no joint has been missed!!! I'm on leflunomide (off MTX as awful side effects). My rheumy is convinced I also have fibromyligia- I've done the info session and I don't think I have it. So now apparently all my pain is from the fibromyligia and not RA!!!! My painful swollen joints have not changed since since diagnosis other than more joints joining in. Last may I was told that if I didn't improve then they'd go down the biologic treatment route. Well things haven't changed!!! I can't walk far due to hip and knee pain, I'm taking codeine every day without fail. In Nov I had steroid injections into my knee and was told that to be in the amount of pain I was saying I'm in then my knee should be swollen like a football!!! My joints all swell but it's not always visible to others. I can see their swollen. My rheumy has been amazing until they decided on this fibromyligia diagnosis so I really don't know what to do or how to say I don't agree with it!!! I was allowed any more steroid injections this week as she wants my wrist and finger joints scanned. I dont understand why they dont scan my kness and hips as they are always extremly painful. Then I may be put on hydroxychloroquine. She's also just prescribed amitriptyline to help with the pain at night and to help me sleep undisturbed.
Should I see another rheumy? I have question the fibromyligia to her and she says that it's because ur body become sensitive to pain???? Also I'm unable to work which is super hard for us as a family as I've always worked!! Thank u for reading my post xxxx