Farewell Tocilizumab...hello Baricitinib: I was... - NRAS

NRAS

36,577 members45,184 posts

Farewell Tocilizumab...hello Baricitinib

Chezis21 profile image
11 Replies

I was dagnosed with RD 3.5yrs ago, been on Enbrel, Rituximab and Tocilizumab. My last infusion was 4 weeks ago...

Today I start new treatment. Baricitinib which is a JAK inhibitor. No more infusions. I take one tablet a day along with my weekly 20mg of MTX.

I'll be having a hip replacement as soon as I am well enough to cope with the recovery then a knee replacement thereafter.

All this in 3.5years. I am perpetually grateful for the very excellent and continued support of the RA team at Ayr Hospital (NHSNAA).

Here's hoping the new treatment is successful.

Written by
Chezis21 profile image
Chezis21
To view profiles and participate in discussions please or .
Read more about...
11 Replies
sylvi profile image
sylvi

Good luck with your surgery. I had two knee replacements on the same leg the being so much better than the first. As long as your prepared to do the exercises you will be fine darling.xxxxx

Chezis21 profile image
Chezis21 in reply to sylvi

I would climb Mount Everest if that was part of the rehab! 😂

Happy that your knee is working for you.

We sure have our challenges!

I went to patients rheumatology conference about a month ago and consultants had a lot of good things to say about baricitinib so really good luck with it.

Chezis21 profile image
Chezis21 in reply to

Ever the optimist 😀 Thanks x

allanah profile image
allanah

Great news. Good luck with your next treatments x

Chezis21 profile image
Chezis21 in reply to allanah

Thank you so much. I'm very hopeful 😀

Maat2002 profile image
Maat2002

I am so happy for you. I hope the new medicine works. Are you in the UK or USA? I herd this medicine has not been approved by the FDA for the US.

nomoreheels profile image
nomoreheels in reply to Maat2002

You're correct, the FDA haven't approved it yet. The manufacturers have been invited to resubmit an NDA (New Drug Application) in January 2018 to include new safety & efficacy data. They anticipate the FDA will classify the application as a Class II resubmission, which will start a new 6 month review cycle.

Chezis21 profile image
Chezis21 in reply to Maat2002

I live in Scotland. Than you I'm hopeful that this one will work for me. x

nomoreheels profile image
nomoreheels

I'm pleased for you. It's good to hear the JAK inhibitors are being prescribed more regularly now & I hope it works well for you.

Chezis21 profile image
Chezis21 in reply to nomoreheels

I'm one of two patients on it in my area. The other patient is 1mth ahead of me. One of the good aspects is that the drug can be taken right up to a few days before the hip operation and restarted immediately afterwards.

You may also like...

Hello & help! Tocilizumab or Baricitinib?

trying to make a choice between Baracitinib and Tocilizumab now? I’ve compared side effects & risks...

Swapping Baricitinib for Tocilizumab

rheumatologists are swapping me to Tocilizumab in a week’s time and I must stop Baricitinib, which,...

Tocilizumab or Baricitinib?

responded well to Enbrel, had no reaction to Rituximab but success with Tocilizumab or Baricitinib?...

Baricitinib

wizard today and he has suggested I try a new drug baricitinib. I haven't heard of it and wonder if...

baricitinib

moving from infliximab infusions (which are no longer working) to , possibly, baricitinib which is...