Farewell Tocilizumab...hello Baricitinib: I was... - NRAS

NRAS

37,273 members46,139 posts

Farewell Tocilizumab...hello Baricitinib

Chezis21 profile image
11 Replies

I was dagnosed with RD 3.5yrs ago, been on Enbrel, Rituximab and Tocilizumab. My last infusion was 4 weeks ago...

Today I start new treatment. Baricitinib which is a JAK inhibitor. No more infusions. I take one tablet a day along with my weekly 20mg of MTX.

I'll be having a hip replacement as soon as I am well enough to cope with the recovery then a knee replacement thereafter.

All this in 3.5years. I am perpetually grateful for the very excellent and continued support of the RA team at Ayr Hospital (NHSNAA).

Here's hoping the new treatment is successful.

Written by
Chezis21 profile image
Chezis21
To view profiles and participate in discussions please or .
Read more about...
11 Replies
sylvi profile image
sylvi

Good luck with your surgery. I had two knee replacements on the same leg the being so much better than the first. As long as your prepared to do the exercises you will be fine darling.xxxxx

Chezis21 profile image
Chezis21 in reply tosylvi

I would climb Mount Everest if that was part of the rehab! 😂

Happy that your knee is working for you.

We sure have our challenges!

I went to patients rheumatology conference about a month ago and consultants had a lot of good things to say about baricitinib so really good luck with it.

Chezis21 profile image
Chezis21 in reply to

Ever the optimist 😀 Thanks x

allanah profile image
allanah

Great news. Good luck with your next treatments x

Chezis21 profile image
Chezis21 in reply toallanah

Thank you so much. I'm very hopeful 😀

Maat2002 profile image
Maat2002

I am so happy for you. I hope the new medicine works. Are you in the UK or USA? I herd this medicine has not been approved by the FDA for the US.

nomoreheels profile image
nomoreheels in reply toMaat2002

You're correct, the FDA haven't approved it yet. The manufacturers have been invited to resubmit an NDA (New Drug Application) in January 2018 to include new safety & efficacy data. They anticipate the FDA will classify the application as a Class II resubmission, which will start a new 6 month review cycle.

Chezis21 profile image
Chezis21 in reply toMaat2002

I live in Scotland. Than you I'm hopeful that this one will work for me. x

nomoreheels profile image
nomoreheels

I'm pleased for you. It's good to hear the JAK inhibitors are being prescribed more regularly now & I hope it works well for you.

Chezis21 profile image
Chezis21 in reply tonomoreheels

I'm one of two patients on it in my area. The other patient is 1mth ahead of me. One of the good aspects is that the drug can be taken right up to a few days before the hip operation and restarted immediately afterwards.

Not what you're looking for?

You may also like...

Tocilizumab or Baricitinib?

HI -- I've had RA for 14 years, diagnosed at 40. Have had a great partnership with Enbrel for over...
Squarefish1 profile image

Hello & help! Tocilizumab or Baricitinib?

hello, I’ve had RA for 10yrs, I’m 47 and this is the first forum I’ve joined, I’m battle weary,...

Tocilizumab

Hi has anyone been on the infusion of Tolcilizumab as I am going on this new treatment ?
ann57 profile image

Swapping Baricitinib for Tocilizumab

Hi All. Been having a bad time with flare and fatigue following Covid and although on Baricitinib...

Tocilizumab

Hi all, I was diagnosed with RA approximately nine years ago and started off on Methotrexate,...

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.