I was diagnosed wth PMR at 62 by my original rheumy last winter, having all the hallmark symptoms for that condition: sudden onset, muscle/tendon/bursitis pain in arms and thighs, swelling in my hands and fingers but between the joints, not the joints themselves. The pain was quickly responsive to 20mg prednisone...considered a determining factor in differentiating PMR from RA and other auto-immune conditions.
My new rheumy (old one moved away) insists I have LORA and not PMR, but I have never in my life had a single pain or any swelling in any joint in my body unless I injured it. The new rheumy keeps pushing methotrixate, leufonomide and plaquenil, none of which does a thing for PMR, and wants me to reduce and suspend prednisone quickly. Prednisone is the only effective treatment for PMR.
I tried to taper the pred dose by 2.5 mg last spring, but had a serious flare that took 3 months to subside, so I returned to 20mg. I started tapering the pred again on a very slow plan in September, and am now down to 15mg with no increase in symptoms. I did develop the pred cheeks and hump and belly, but those, too, have decreaed as my dose has decreased.
No one wants to take pred, but I really don't want to take drugs for a condition I don't think I have.
Does anyone have any advice to offer?