I’ve had RA for a very long time now. Most of the time not knowing about it. I think it started in my fingers. I now have to pop my fingers every hour or so cause if I don’t they hurt and get stiff. In sixth grade my shoulders started hurting when I had a backpack on and when I sat on a seat with no back.
In seventh grade the pain started in my knees. That is when I told my mom I needed to go to the doctor because it was getting painful to play sports. I used to love playing sports. Now on this day I can hardly get out of bed without wanting to cry. As the past few years have gone by my pain has only gotten worse. I’ve had RA since at least fifth grade, when it started causing damage. But the pain didn’t start till a bit later on. Plus, I only got diagnosed two years ago in ninth grade. My mom cried cause she’s have to constantly see me in pain but now she just doesn’t understand the amount of pain I’m in.
My mom is the kind of women who thinks once teenage years hit we’ll stop talking to her, but in reality she stops listening. I haven’t been to a rheumatologist in over a year due to the fact we now move every few months and she’s a selfish prick sometimes. My first rheumatologist was terrible anyways. He never put me on a medication like humira. Just pain killers. With terrible symptoms. Then my clinic doctor switched me to a painkiller without as bad of symptoms and that’s what I’ve been on since. It no longer works btw. And both my parents yell at me everyday saying I’m using my arthritis as an excuse to get out of chores. When in reality I physically just can’t do it. I can’t sit for more than a few minutes without needing to lean back. If I sit slouched for a few minutes it hurts like hell to straighten up. I also can’t stand for long either.
I read somewhere that most people with RA end up in a wheelchair around a year and a half of diagnoses and it’s been two years and I sure do wish I had one. It’s embarrassing when I sit on the floor in stores because it hurts. I would like others opinions of what I should do to get through to my parents the amount of pain I’m in. How can I do that if nobody ever listens?