Living with RA: Hi everyone! I’m 38 and was diagonsed... - NRAS

NRAS

37,263 members46,132 posts

Living with RA

Black2 profile image
11 Replies

Hi everyone!

I’m 38 and was diagonsed with RA in May 2018 after suffering from a 4 month flare up which the Dr initially put down to vitamin D deficiency! I was diagnosed pretty quickly and immediately given a steroid injection to help alleviate the pain and out on Methotrexate 10mg. I am now pain free except for slight joint pain here and there; only when I overdo my household chores. It has been a rollercoaster ride for me as I was suffering from my first major flare up( and I didn’t know I had RA), whilst my husband was abroad caring for his terminally ill sister. I was diagnosed by my Rheaumatologist after my sister in law’s funeral but had to deal with it on my own as my other half was still with his family grieving for thier loss. The pressure of losing a family member and still having to go to work ( employer wouldn’t give time off) looking after the kids, driving with the stiff and painful hands definitely put more pressure on my body- it was the worst time of my life. The Steroid injection and Methotrexate was a god send and couldnt come any sooner. I still can’t believe I have RA and wish there was something I could eat or do to make it go away. Any thoughts on healthy living, I’m all ears...x

Written by
Black2 profile image
Black2
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Frankiefocus profile image
Frankiefocus

Hi Black2 sorry to hear you have been diagnosed with RA. Im in the same boat and was diadnosed just last June. I find cutting down on processed food and dairy products have helped me with flare ups. I love chinese food and have cut down on that also. Swimming and eating foods with the likes of ginger and turmeric is also good for RA but then everyone is different. Hope this helps.

Black2 profile image
Black2 in reply toFrankiefocus

Thankyou Frankiefocus. Alot of people have suggested Turmeric and ginger and I have tried using 1 tspn of both powders in a small cup of water and drinking- yuck! But I’m sure, if i carry on and make it a daily routine, it might do my joints some good!

Frankiefocus profile image
Frankiefocus in reply toBlack2

Try the capsules from Nu-U, you can get them on amazon and there cheap.

rab1874 profile image
rab1874

Hi I find eating a lot off plant based food helps me and lots off 🥬 plus cutting out a lot off prosessed foods plus exercising and keep moving is important xxx

Black2 profile image
Black2 in reply torab1874

Thankyou rab1874.

I generally avoid processed foods and not a big fan of junk food either. Definately, exercise is ia a must, just got to find time to incorporate it in my life. I’m experiencing hair loss too, dont know if it’s related?

helixhelix profile image
helixhelix

That's great that a low dose of MTX has worked well for you. Long may it last!

My personal approach is to do everything I can to keep a healthy body both to keep the disease as calm as possible and so I can tolerate the drugs well.

So sleep is hugely important, as is reducing stress. And if you can't avoid stress then look for ways to manage it - mindfullness, meditation, writing poetry - what ever works for you. Then daily exercise also very important. Even if you're rushing about all day you're not using all your muscle groups so even 15 minutes stretching exercises can help.

And then diet. Say goodbye to processed foods, and focus on as natural a diet as possible. Variety and moderation are important. There are many specific diets people recommend none of which have done anything for me, but it's very individual. And I prefer to spend money on good food rather than supplements.

For the moment I'd aim for making the RA a small and routine part of your life, that doesn't get in the way of anything you want to do.

Black2 profile image
Black2 in reply tohelixhelix

Thankyou helixhelix. Very helpful advice. I will definately incorporate exercise into my daily routine.

oldtimer profile image
oldtimer

As well as the other suggestions you have had, I noticed you suggest that you are having problems at work with an employer? There is a useful booklet from NRAS about the responsibilities of an employer to make adjustments for people with disabilities - worth a look to get some idea yourself, even if you are not in the UK.

Black2 profile image
Black2 in reply tooldtimer

Will definitely look into it. Thanks

Rheumagal profile image
Rheumagal

Hi Black2. Glad to hear your finding some relief. That’s a lot to deal with 😞

I’m sorry it’s been so tough.

Like others, eating as clean and as nutritiously as you can will help keep you as healthy as possible. I like to include omega-3 oils. Anything that fights inflammation. But find what works for you. We are all different.

I also found Pilates to be the best exercise for me. It’s low impact and focuses on a lot of stretching and controlled movements that don’t put any strain on joints. I found some awesome YouTube videos.

I’ve also had to learn my own personal limits so I don’t overdo it and learning to say no.

I hope you find what works for you.

All the best

Black2 profile image
Black2 in reply toRheumagal

Thankyou Rheumagal. I do find pilates helpful and it doesn’t put too much pressure on my joints. I think clean eating and exercise in moderation will be my goal, everything else will eventually fall into place. Fingers crossed the MTX keeps on working...

Not what you're looking for?

You may also like...

How much pain?

Diagnosed with early onset RA January 19 and put on 10mg methotrexate. Told target would be for me...
GinnyE profile image

Teaching with RA

Hi, I’ve been having a severe flare on my knee since Feb, which is gradually being treated -...

Flare ups- how long do they last?

Hello! I've been on methotrexate for about two months now and I've not noticed any difference in...
MsEm profile image

RA treatment

Hi everyone, I have been feeling very well since my first steroid injection over a month ago. I...
Sineaderoo profile image

Help with RA pain

Hi,this is my first posting.My husband was dx with RA July 2012. He keeps having bad flares.He has...
zilpha profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.