My wife was recently in hospital with septic arthritis in her shoulder. She's was discharged after having iv antibiotics and is now taking oral antibiotics which seem to be responding well, and she's being closely monitored with weekly blood tests and me taking her temperature!!
She has been on anti tnf embrel for the past 10 years but has now been told that she cannot take it because of the infection risk etc . In 6 months time her Rheumatologist has said that she will have to get on to a new anti tnf.
Obviously not being able to take what seems to be for her a "wonder drug" that has allowed her to carry on her life , is a massive problem and I can see how this is causing her major problems at the moment with flare ups. She's 32 years old!
This weekend we had our wedding which was wonderful but now she seems to be paying the price of being on her feet quite a bit , she has had the most crippling flare ups in the evening restricting her movement.
Thankfully her Prednisolone and pain killers seem to be helping her during the day!
I was wondering whether anybody else has had this experience of being taken off an anti tnf for a period of time and how they have coped / is there anything that helped in the meanwhile?
I think the stress of our wedding may have played a part in causing flare ups so I'm hoping now it's over she will be able to relax and that will help.
I feel quite helpless watching her in pain and I know she's very down at the thought of not being able to have any anti tnf for 6 months , so I'm providing lots of hot pads and shots of ginger and tumeric ..... does ginger / tumeric actually help?!
Any help or advice would be gratefully received at this rather testing time and any positive stories that I can pass on to her I know will help,
Many Thanks in advance .