I thought I would share my journey with everyone.
July 2014 I was 40 and ready to have my baby. Ryan was born on 17th July 2014 & I was over the moon, I just wanted to do everything for him & I did. Ryan was a few weeks old & I could feel my wrist & shoulder getting sore, to the extent were I couldn't lift my arm up. Several days later it was gone.
Ryan was 13 weeks, his Christening was 12th October 2014. The day of his Christening, I just didn't feel right. Both my hands had swollen, they were burning hot & words couldn't describe the pain.
Since Sunday 12th October 2014, I have been crippled. I can't even hold my baby as they pain is so bad. All of my joints are so sore I can't even turn a handle to open a door, brush my hair, feed my baby (which is destroying me).
I have never been to my doctors so much in my life. I got bloods taken & they came back inflammation & liver were high. I was told I had a viral infection from 3 different doctors, all I could do was to see it out.
It was now 10 weeks since Ryan's Christening & I had been suffering the worst pain ever, I just wanted to know if it would ever go away cause I just wanted to hold my wee boy!!
Went back for more bloods in 2 weeks, results were the same.
I changed my doctor, when he examined me etc he said this is not a viral infection. As I was previously told. I was urgently referred to the hospital for scans. Got scans of my Liver and sent to a Rheumatology Specialist.
Several weeks with the specialist I was diagnosed with Severe Rheumatoid Arthritis. They said they had never diagnosed someone that fast in 27 years. It is that severe.
I've never been in so much pain in my life, it's horrific.
I just wish I could wake up one morning and feel alright to lift my baby out his cot, I was missing all that with him. It was breaking my heart. I just have to be strong and keep going, until these meds can be sorted and start working.
All I've ever wanted was my own baby and waited till I was 40 after seeing the world and enjoying my life, maybe this is my punishment for waiting.
Nearly two half years have gone buy and I am still in horrific pain, nothing seemed to work for me. Have been on Humira for a while, first few weeks were good but that's about it. I started Tocilizumab about 6 months ago and the drug is working. I've not had any steroid injections for over 6 months now as they seemed to not work as good as before. The Tocilizumab is working.
I am also on methotrexate this has caused me to lose all my long hair.
My wee boy's smile, makes me want to fight this disease more than anything for my boy, I am so lucky to be Ryan's Mummy.
I have a wonderful mum I don't know what I would have done. I can't thank her enough for helping me through this time.
Hope you don't mind me telling my story.