Blood results: Hi all, Because my white blood cells are... - NRAS

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Blood results

LizzieR profile image
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Hi all,

Because my white blood cells are so low, I have been told to stop Mtx and Benepali. I've stopped for three weeks and my bloods aren't coming back up. Anyone experienced this? The co

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LizzieR profile image
LizzieR
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5 Replies
LizzieR profile image
LizzieR

Sorry, fat fingers again... The consultant says it should be coming up and I can't go back on without it coming down... My PSA is progressing merrily- though did when I was on it. No remission yet...

BoneyC profile image
BoneyC

I've had neutropenia a few times, had to stop MTX, but recommenced once my neutrophils recovered.

LizzieR profile image
LizzieR in reply to BoneyC

Thank you- hopefully mine will go back up soon!

I've had this years ago when I was on a high dose of methotrexate, it was so low I was told not to go out. It came back after after stopping the drug and I later went back in it st a lower dose and have been fine ever since. I know it's worrying but having low white cells is dangerous so no way round it I'm afraid.

LizzieR profile image
LizzieR in reply to

Thank you- I will hang in there. I'm just a bit worried because mine isn't going up even after stopping! And I started low anyway... Hey ho. It's reassuring to hear yours got better. Thank you x

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