Hi I've noticed on here that people seem to know their specific blood test results. I am wondering how this happens? I have tests every two weeks and never know the results. The only hint is when I see the rheumy nurse stare at her screen at the dmard clinic and say 'your bloods are ok'. I am never told specifics.
I did ask at the start to have copies of test results and letters about me - since I am the one living with this body I think I should be fully informed- but was told this was not standard practice and I would need to make a special request. I should add I am in the NHS in the UK - i.e. even lucky to be getting any appointments.
I have no named consultant as several left when I was diagnosed and I only ever see a nurse who I do not really feel comfortable with.
The NRAS video about the patient Jane being asked by a Rheumatologist how she feels is good but I can never imagine this happening here (in my experience) - there is no space for it, and presupposes you actually see someone enough to feel you can trust them. I just feel like a non allocated patient who is less important than ones who actually have a doctor they see.