Sorry for the long rant, but need to get this out and hope someone has some advise.
In summer of 2015 I started to feel some joint pain in my feet. During the autumn it spread to my hands and wrists. GP advised to see if it went away on it’s own.
Spring 2016 pain got worse with stiffness and joints feeling warm. Got referral to Rheumy. Blood test, ultrasound and MRI showed nothing (RF, anti-CCP, ANA). Rheumy tried to put me on a short course of prednisolone. I felt relief (though pain didn’t completely vanish) but rheumy and GP agreed it had no effect.
Between summer and end of the year had two more appointments with rheumy, blood test was negative. Rheumy gave up on me.
GP referred me to a neurologist, in the beginning of this year. He couldn’t find anything causing all the pain, but sent me to orthopaedic surgeon who recommended insoles for me. Got insoles, but I am not quite sure how much relief they provide.
I’ve been on 1000 mg paracetamol + 400mg ibuprofen for the pain 3-4 time a day. It only took the worst of the pain. Tried tramadol, but can’t cope with side effects. Through it all I’ve been very tired. Some days coming home from work, feeling like crying in pain and just had to go to bed.
In the spring I was also diagnosed with psoriasis, something I’ve probably have had to some degree for years, but since it is mainly in my ear it hasn’t been easily visible.
GP sent me to another rheumy, who just noted that my blood test so far have been negative and since I don’t have large/visible swelling of my fingers, dismissed psoriasis arthritis.
Now GP has referred me to a pain clinic with chronic pain.
I’ve just moved to another position within my firm in order to be able to work more from home. However in the beginning I need to be at the office, this of course coincided with worst pain yet and joints that got tender to touch.
So I got desperate and decided to test with prednisolone again. Started with 15 mg per day. It has taken most of the pain and stiffness away. The second day I could get by only on paracetamol and on the third day I went without painkillers. Though my joints still feels warm and I feel a bit more pain in the evening (I take them in the morning)
My GP finds it strange prednisolone works so well for me, but has agreed I keep taking them (over the next few weeks reducing dose to 2,5 mg) until I get into the pain clinic (long waiting list).
For me that doesn’t make sense, as I understand if prednisolone works there is inflammation or is that not true?
Also I am not comfortable taking meds with so many side effects without any diagnosis.
My last blood test was 6 months ago.
So my questions are do I insist on new blood tests? Does it seem right to just accept the referral to a pain clinic? Should I push for any other kind of tests? Any input and good advice is highly appreciated.