Just thought I'd post to all those who are new on this journey and a bit anxious. I had my first Rheumy nurse appointment yesterday and had no idea really what to expect. I was quite apprehensive about it all and the thought of starting the mtx has been quite daunting. The nurse was really lovely and talked at length about it, but to be honest, everything she told me I had already found out here! Only stumbling block I had was requesting a steroid injection as my consultant had written me up for tablets, but I don't want to take those. She was very reluctant to give me it, so got a doctor in who agreed with me and my reasoning (as self care and walking were becoming increasingly more difficult and I just wanted a little something to tide me over while the mtx hopefully gets to work). My liver result were flagged, so my dose of mtx will be smaller and built up over longer so as not to irritate my liver further. To be honest, I do wonder if I'd had a particularly good bottle of red the day before my bloods, hence the result! Starting at 10mg and built to 15mg over 6 weeks when I have my next appointment to see how it's going. A Folic acid tablet given to take the day after with the advice to call her if the side effects were bad and she could increase it. Blood tests have to be done fortnightly and I can track them on the website! Took the MTX last night with a feeling of doom!!! It's now the afternoon of the following day and I feel reassuringly OK!! Very slight nausea - but that's possibly due to eating McDonalds at 9pm last night! I'm tired and little light headed, but other than that, no problems so far!!! And as for the steroids - I can move my fingers a little bit better today - so very happy days!!!
Hope this offers reassurance to anyone yet to have their appointment xx