ra sufferer

[Rocky07]

most of you have heard my ra story and difficulty in taking medications able to s as you know I am presently wheelchair bound at present due not being able to take medications I am positive but is there a way back I know God is with me all the way

[Eiram50]

Hi Ricky

I've followed your story and things sound difficult for you- mostly around your search. I know your feelings around meds and wonder where that leaned you in terms of your RA?

I too hate the fact I need to take lots of meds but with both hips , both knees and foot surgery over a small period of time, I know the damage that can be done, the rapid and irreversible damage , without being properly medicated.

There are clearly other things we can do to support our bodies - diet, regular exercise but it is a disease and to my mind at times does require some medical intervention ( meds ) to control .

Is it something that may be worth revisiting, for you? It can be a difficult thing to process and there is lots of good counsellors out there that can help people explore their reservations, fears etc regarding their condition and the choices we need to make thereafter.

I'm sorry I've nothing to offer with regards to your question other than to say I wish you luck in getting things sorted out that allow you to get to a place of peace.

Marie

[Eiram50]

Should read, where that leaves you in terms of you RA- typo, apologies

[calamityjane1971]

Sorry to hear that. I am also wheelchair bound due to my RA. It's not fun by any means but at least I can get out & about with my power chair.

[seneca]

Hi Rocky. Do you think you will get the opportunity to try the LDN that you were researching earlier? Perhaps that will help.

I'm not sure if you are not taking medications for the time being, or if you will never be taking medications?

I myself, though on methotrexate, am keeping a very sharp eye on platelet-rich-plasma treatments for the future. PRP works well for osteoarthritis and there are more and more studies on its efficacy in RA. See, for example: link.springer.com/article/1.... I think that it might take more than a few years, though, for the medical profession to figure out exactly how to prescribe the injections.

My sister is also wheelchair-bound from RA. She chose not to take any medications when she was diagnosed about 15 years ago. She has recently, however, regained a lot of movement and a great reduction in pain using morphine patches. Hopefully, though, you will find a more effective way to halt the disease.

Sorry I don't have any immediate solutions for you. Take care

[Rocky07 in reply to seneca]

I am definitely looking into ldn I am not sure how I will go being under a public hospital as they seem to have their own ideas and ldn has never been mentioned and it has been around for a long time and is safe and not toxic like many other drugs with many side effects and with ldn you dont have to try other drugs first as I have said I have done a lot of research and read honest medicine. by Julia schopek tbe ldn book and the promise of low dose naltrexone

[seneca in reply to Rocky07]

Yes, I don't think you'll have much luck with LDN at a public hospital. The LDN research trust webpage does list some (private) prescribers in Australia - NSW and Queensland. If you could find a way to pay privately?

[seneca]

Sorry - i see that link isn't working for the Springer article. Try this one: ncbi.nlm.nih.gov/pubmed/281...