Hello, I've just joined this forum - the first for me. I was diagnosed with ankylosis spondylitis about 5 years ago and been through lots of tablets etc, which didn't work and now on the weekly injections of Benepali. Would be good to talk with others with the same condition as the most frustrating thing about the way I feel is my friends and more importantly my colleagues, although kindly say 'poor you!' have no idea how I'm feeling. Feel like if I say anything or can't do my work I'm 'playing the same record so keep it to myself which isolating and depressing.
The rematolagy dept I visit in london are brilliant and so reassuring I have to say.
Would love to make contact with people who understand .