How do they make you feel like some sort of fraud?
Well as some of you know I have gone through the last year since my diagnosis in March 11 with lots of pain, foot and neck problems, lots of steroids and various different ra and anti tnf drugs, so much so that my work and occupational health stated I wasn't fit to work and i was retired in May.
Since then i submitted a requests for my pension which has been the most stressful time for me as you have no job and they say you are not fit for work but then you have to wait on another doctor giving you permission for a pension. So no money coming in and stress and out of my control, all major, major problems to me.
So as you are entitled I asked to see the Rheumys report to the pension people and its like he never met me, " I have a mild background of inflammation with severe flares"... when did i have this "mild day", did he not remember this is when i had steroids every 6 weeks so i can function.?? He cannot say if I will be better cos maybe the meds will work sometime?? AND ok then I have Ra, neck discs burst , diabetes and problems due to steroids, etc etc and this might eem maybe mmm possibly make it difficult for me to work, yeah,, dont put yourself out please!!!!!
I feel so let down and told his secretary to tell him I'm disappointed that even though I only ever see the sidekicks he should know me better than that and that's why i sat outside his office crying for help the other week. Oh and why then do his letters from clinic that he enclosed say severe ra and not responding to treatment, still has active inflammation in every one, I hope the pension people read these ones that he enclosed.
I told her to go ahead and send the letter cos hopefully the stuff from managers at work and the gp and the work occy health will be enough with his "i dont think she could work day to day" stuff
This whole disabled, dla, pensions, blue badge stuff makes me feel like some sort of criminal. If i did not need to pay the mortgage I wouldn't apply for benefits...I hate it and feel like a fraud, and i know i'm not. I wish i didn't have Ra, i wish i was at work, i wish i didn't hobble with sticks and could go shopping again and I wish i wasn't sick with diarrohea and sore throats with my Humira which I was praying would be my wonder drug.
I hate how this government seem to think that i am a timewaster and need me to go through lots of assessments as embarrassing as they are to get any help. I know its harder in America but we pay tax to get this help in britain but the barriers are unbelievable and then you hear that in Europe the standards of care are higher, well i now believe that.
So as you can tell i am angry at the world today and the doctor for not just simply saying yes she is too sick to work thats why she is not working.
And guys I'm not sorry for moaning I know you will read this how I mean it to be read.
Opps, sending you my love, getting it off your chest is worth it. Hope and pray there's a light at the end of your tunnel soon.
Sending hugs and kind thoughts. love sylvi.xx
sorry have taken a deep breath!!
I agree with You. The system is so archaic and some who respond to your
Requests for info as absolutely useless at their jobs.
I entirely agree with You. Don't give up.
You could try for a crisis loan from the jobcentre.
You have effectively been made jobless, so would be entitled to benefits.
Good luck will be thinking of you.
It should be left to the people who are treating us not those jobsworth who have never seen us or know anything about us. I know there are some who milk the system and these people make me see red when i am unable to work due to this wretched disease.
Hope you have success allanah.xxx
My sentiments exactly, let off steam if you cannot do it here, where else is there.
As above sending hugs to you,
You know you're not a time waster, benefit fraud, or cheat. Your family and friends know that too. We know the same. So really don't give a £&%^*+ for what some anonymous person somewhere might wrongly think.... it's not worth your time. As long as rheumy has written the magic words of not being likely that you can work, then ignore all his ifs and buts. Soon this will all be sorted, and you can move on. Until then, vent away! Better than kicking a cat for sure. Take care, Pollyx
Definitely don't kick a cat, but remember that you are seriously ill, and someone with a brain will read your application and realise that! It's sometimes hard to find that - even though you feel dreadful on a daily basis - people aren't necessarily accepting that fact, but, as Polly rightly said, you and your loved ones know what you're going through, and some faceless rheumatologist who barely makes time for you is only of value in as far as getting that application agreed.
Good luck, and try to stay positive,