Monday morning moans & blues..

My condition started in 2011..I fought it for as long as possible..sadly it now has changed my whole life..unfortunately I am allergic to most antibiotics & medications. I end up with rashes.sickness & high blood pressure.Ive tried every meds on the market.I could open my own chemist..I now have to take morphine for pain.my hands are like having a headache 7days wk 24hrs day.on bad days like a migraine..I've had x-rays to every scan possible.carpet tunnel o.p. steroid injections..but I'm apparantly. Still unique.bizarre.& so severe ( Dr words).. that they still cannot find the full condition or what's causing my hands to get more painful & deformed by the day..I've had electro' tests.so many blood tests. I'm sure supplying blood bank alone.my hands lose feeling.tingly.& fingers go white with circulation..& this morning I receive letter from consultant to cancel my appointment in May to June.!!! Last saw him in Sept..last failed us injection 22dec..so to say at wits end is understatement..I feel like because they don't know they are brushing me aside.I have no other door to go through.no other tests or scans to have & no light at end of tunnel..so after my rant(sorry). Can anyone advice what I can do to make someone listen or help..PLEASE.👿👿..

[EmmaS-NRAS NRAS]

Dear Handydebs,

Sorry to hear that you are struggling at the moment and no need to apologise - it's what the community is here for. I'm sure there will be lots of replies from other users but do consider giving the NRAS Helpline a call too as I'm sure they will be able to offer suggestions as to what your next steps are - 0800 298 7650 (Mon-Fri).

best wishes,

Emma-NRAS