Have HUGE abscesses under tongue and on boob! Started antibiotics
Sjogrens bad so very dry like a prune
Having to see specialist OT for new splints as lumps making old ones unusable
Seeing oncology radiologist for radiotherapy to both hands to try to shrink lumps
Mum in law in hospital .. Again
Got thrush yuk!! Started antifungals
Note to self .. Get bigger medicine cupboard ...
Apart from that had a lovely time in caravan in the lakes, went the day of my infusion of abatacept! And didn't fall out this time !!! Steroid infusion June 12 th hurrah !
Hope you are all well and good and will join in soon when feeling better. xx
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allanah
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You poor thing, Allanah. You sound very run down, I don't know what to suggest. I understand what you mean about the bigger medicine cupboard, though! I'm considering that too. I just hope that you start to feel better soon. Clemmie
Hahaha! I really do know exactly what you mean. I seem to be propping up the Saudi private healthcare system on my own at the moment, I'm spending so much time at the hospital and with my medication. Thank goodness my husband's company has paid for good healthcare insurance!
It's quite dusty here today but sooooo hot! I would love to be out but I am so scared of getting burnt even with a high factor sunscreen, so I tend to go out about 5ish when it's still hot but the sun isn't quite so strong. Hopefully you will get some nice weather soon. I'm coming back to the UK at the beginning of July for 2 months , so hoping that it will be nice then. You see, I'm greedy for nice weather after being here!
It's always so lovely to see how green it is back home. You really don't appreciate it when you are there all the time (at least I didn't until now)! But yes, it's great to feel the rain as long as it's not too cold!!! Clemmie
Ha, we used to live in Yeovil so we know it well! My sons went to school at Downside and it was always an expat weekend that weekend and we always ended up stuck in the traffic!
You really have so much on your plate!!! It sounds like you are now Boots pharmacy, I know where to come for my meds. Poor Allanah things can't get any worse for you.
Eating garlic will help the thrush, abscesses and probably knock your mom in law out when you next see her. perhaps garlic tablets would be better. eating yoghurt with acidophilus may help too. Thinking of you x
Oh my days allanah. I had noted your significant absence recently except for the odd reply but figured you'd gorn orf somewhere but it appears you're just going orf! How about turning yourself inside out, pop yourself in an autoclave & climbing back in again lol!! Seriously, you've got yourself run down so take time out if at all possible & take care. Don't rush back too soon otherwise you won't be fit for the summer & all your plans.
Where is the pic taken, looks lovely & serene but did you need to stand on your heid to take it?!
Me too M but I figure now my loading doses are done I have the Orencia monthly . So must have fewer side effects than fortnightly.. Well that's what I'm telling myself x
Oh gosh! Wish I knew how to sort out the photos on here!! It's Coniston water in the lakes. We were in the van with three other families camping. There was only cold water so we sat with lanterns etc and BBQ fires! Very hippy !
Sounds just the ticket. Love the lakes & it's only 45 mins up the M6 from us. I remember going back to '83, my mum died that Easter so my H (fiance at the time) gathered our closest friends last minute & we all went camping to Hawkshead. Some brave ones swam in Windermere, I paddled but not for long, it's never warm but at Easter it's chilly to say the least brrrrrr!! I also remember going to the Hole in t'Wall in Bowness & one of our friends wanted vinegar for his chips & being told "you'll not get that 'ere, it taints th'ale!!!
Allanah that's really rubbish you poor thing - I bet you keep smiling though you seem such a positive person , really gets you down some days though eh ..thinking of you love Claire x
Ye but hoping the Orencia works, the sugars will come down and the infections are being treated. I'm lucky really x
Um - lucky in relation to what or whom??! I think you're just very brave with an incurable passion for life! Good luck with the radiation on the lumps. Twitchy X
Hope you feel better soon. Just come back from a week in Cornwall and just chilled but first day back at work Monday, omg soundo in the armchair early evening until 3am and woke up with pain so wrapped up with splints and bandages and compression gloves today at work. Off my drugs for a month because of bacterial infection, no mtx and waiting to start Humira roll on 10th June last day of antibiotics, but this shrinks into insignificance compared to you so hope you do start feeling better very soon. Aren't caravan hols fab I love them x
Not at all re the pain, RA pain is awful x yes I love the caravan , hubby does everything ! BBQ, setting it up and shoving me up the steps ha ha but it's do relaxing x
Thanks but I'm sure it will be alright on the night. I'm supposed to be going for a pamper weekend for my friends 50 th at a beautiful old hall ! So Antibiotics do your stuff!!
Old dog new tricks I know but try & have some really relaxing treatments with some gorgeous calming smellies. I do hope you feel well enough to go, it'll do you the world of good & help de-stress you with all your probs at the mo. X
Yes, getting hot mud ( supposed to help joints hee hee, u think it's evidence based ?!) and gentle massage ahh, dinner out first night and takeaway second night !
Oh sweetheart I don't really know what to say to all of that. I truly thought you'd had your quota of sh** to deal with. Stay strong. I've always triy to think fate chucks this stuff at us for a reason sometimes I think I'm just deluded. Hope it all starts settling down soon xxxxxxxxxxx
Just to be clear folks As I worried someone . The oncology radiologist is a specialist in shrinking lumps, I have a specific variant of RA which includes growing lots of fibromas. These are painful and in lots of very awkward places on my joints hands , feet and back but are not malignant. Apparently I can't have surgery as the lumps would grow again and the scars would thicken but this cancer specialist is expert at shrinking the fibromas and there's not many units in uk that do it. Sorry if I worried anyone unduly xx
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MOANING MINI
It's go, go, go with Rituximab.
Ganglions - does anyone else have them and are they RA related?
