Morning peeps-hope the night brought you some rest...
I decided to skip dinner (which I made) and after a bath, take to my bed; I'd had enough of yesterday 😒
The day started on negative: I'd rung EDF, being a customer, as I'd been advised that smart meters were being installed in my area and that as I'd registered my interest a year ago I'd be top of the list; the guy I'd spoken to the day before was confused as to why I'd not been contacted. 'Oh no, sorry, there are no more slots- you should have registered online! 😖I was not a happy bunny- but what could the representative do? Nothing, as it turns out!!!! Btw- that was a shortened and edited precis of my phone call😊
Round 2: back on the phone to the hospital as they haven't sent my prescription for Cimzia through yet and today is my last (of the first 3 months.) Healthcare at Home have been chasing them (can only do this once a week) first the past 3-4 weeks! I've left messages with the clinical nurses and my rheumatologist's secretary to no avail; why am I having to do this? Well, eventually I had a voicemail- which I picked up at the end of another long, tiring day at work- saying that my funding had expired!!! 😢 I'm embarrassed to have to say: I was a mess! What? Why??? I actually managed to get hold of the rheumatologist's secretary (a rare occurance) who informed me that as I'd cancelled my last appointment (I hadn't: my rheumatologist was ill so they did) my 3 months initial funding was up!!! I certainly don't remember that being part of the deal! Needless to say, I was not a happy bunny (to put it mildly) once again in a day! She was quite rude and dismissive. To cut a long story short (well...shortish) I sat a while wondering what on earth to do and eventually got through to admissions, who....had a cancellation for today- yay! After informing her that she was a life-saver (well- she was) I thanked her perfuslly and breathed a sigh of relief. When I got home (to make dinner; wasn't feeling it) I got a call from the clinical nurse (maybe the secretary wasn't too bad I'm now thinking) to say she'd noticed that I'd got an appointment for today and 'hopefully' all will be ok: to apply for funding for "the next 3 months!'
All I'm saying is: watch out for when/if you get funding- I thought it was for as long as I needed it; not for short chunks of time. Maybe it was my fault that I hadn't listened properly when I had my appointment in the first place, but every appointment is so stressful when your health depends on every one!
Anyway- I'm off to finish getting ready for another long day....with a happy ending- fingers crossed xx