Hello dearfolk, I know I'm a disappearing-reappearing sort of bats, but there you have it. I found myself trying to read and respond to everything, and it was just...too much. I have decided I will do what I can and quit with the self-flagellation for what I can't.
Let's see, a brief summary, for those who know me and those who don't I have sero-negative erosive RD, and I've been diagnosed with fibromyalgia as well. Apparently it's a 2 for 1 sale and I'm not allowed to put RA back now that I have fibro. Who writes these rules???
I was responding really well to Humira, but I had to stop taking it due to a bout of pneumonia last year, and when I got back on it, it didn't work for me anymore. I'm on Simponi (gollumab preciousss, yessss) and it's working great. My Crp is normal, my joints aren't swollen, yaaaaay! The only catch is that I'm still in pain. A lot.
That's where the diagnosis of fibro comes in. When I told my gp he said very matter-of-factly that he would have given me that diagnosis six years ago, but it requires a rheumy to do it. So I still have joint pain, body pain, IBS pain, and it all sucks mud through a straw.
I'm Canadian, so I have access to medical marijuana, and I'm just trying to sort out dosing. pfff like I haven't been trying to do that for the past couple years.
On the plus side, I've had my home interview to get a guide dog, and will probably get a dog this year!!!! On the bad side, I'm still mostly blind. But on the plus side, I'm still inclined to joke about it, so all this other stuff must be survivable. Right? Right.