Morning everyone i hope your well or as well as your ... - NRAS

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Morning everyone i hope your well or as well as your diseases allow you.................

sylvi profile image
12 Replies

Three weeks ago today i was at the weight clinic,well it was the day it poured with rain all day long. Anway it was the start of a bad period for me. I started to go downhill since then. On the Saturday i felt the worst i have ever felt since i was diagnosed with ra and other diseases. I couldn't tell you how i felt or where the pain was. I cried on and off all day long. Then i improved for a few days. The following Thursday we was at a luncheon and i didn't want to go as i didn't feel up to it,but i went and though the meal was lovely i started to feel unwell. Then Friday i had another day like the previous Saturday,just not as bad. Well since all this the fatigue has been blooming awful. Last Tuesday we was out at another luncheon and i was on form when we got there,but by the time dessert was served i told hubby to take me home. He went back,but i just rested. and so it goes on. Saturday we visited a friend and took her present and all i did was sit with her and hubby. By the time we got home the fatigue hit and another awful afternoon ensued. Now on Wednesday we are going down to Cambridgeshire to take the presents down to the family and we are staying overnight with my cousin as hubby finds he doesn't enjoy driving at night anymore. To be honest i am dreading it as we have to go to Ely to see my brother then Stretham to see my sister-in-law then on to Papworth to my cousins to stay the night. I just hope i am up to a busy two days.

Hugs to you all.xxxxxxxx

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sylvi profile image
sylvi
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12 Replies
mary4444 profile image
mary4444

good luck sylvi hope all goes well for u and u have a great time the fatigue is terrible the mind wants to do it but the body hasnt the energy lol no matter how much u sleep still tired xx

mary4444 profile image
mary4444

love the picturexx

allanah profile image
allanah

Busy time , but it will be worth it . Rest up in between x I'm off to the newcastle nras lunch tomorrow which will be tiring but fun!

sylvi profile image
sylvi in reply toallanah

Enjoy yourself darling.xxxx

popsmith1874 profile image
popsmith1874

Yes enjoy darling and pace yourself but I know it's not easy as we tend to do to much when we feel good xxx

farm123 profile image
farm123

Make sure you have nothing planned for the day and day after you return so you know you have time to 'recover'. Double check you have enough meds with you even the ones you save for only when necessary and all your aids/supports etc. Pillows and rugs to get 'comfy' (if only) in the car. Have a good time. Farm

DC56 profile image
DC56

Take it steady Sylvi, I know we try to do as much as possible when we feel good but it doesn't work just look after your self love toy you both 💕💕Dawn

nomoreheels profile image
nomoreheels in reply toDC56

Oo er missus, check your last line Dawn lol!

Crusee profile image
Crusee

Just take it easy sylvi.You have got time to plan this visit well so don't try and fit too much in.Pace yourself and just tell the family that you are not up to a busy schedule I am sure they will understand.

Would it not be possible for either your brother or sister in law to travel from their home to one of the other Cambridgeshire visits and it would cut down on an extra journey to help you a bit?

Whatever you do enjoy yourself and just don't overdo it.You don't want to be out of action for the big event.

Take care.

Crusee

XX

nomoreheels profile image
nomoreheels

If you're not up to it (& you're clearly not) post them, think of yourself for a change. It won't be cheap but if you're in so much pain really you shouldn't push it Sylvi, I'm sure everyone concerned will understand this one time. You stand a better chance of rallying round for your nearest & dearest for Christmas too if you don't keffle yourself out on a trip, especially as you're having such a bad spell. Needing to come home from two local luncheons to me means you really aren't well enough to travel. Think how your relatives would feel when they saw you being upset with the pain, or needing to disappear to have a little cry. How much enjoyable time would you have with them? I'm sure when they see you they'll say you shouldn't have gone. Time (again) to think of yourself for a change, your darling h isn't in the best of health either is he? Hugs from me (x)

sylvi profile image
sylvi in reply tonomoreheels

Well we will be staying with my cousin who has a bungalow so i will rest as soon as i get to hers and hubby won't let me drive. We are going to Ely for ameal and see my brother then to see his sisters in Stretham and then to my cousins then in the morning it will be home and rest for me ready for christmas.xxxxxx

Sharonbernt profile image
Sharonbernt

Sorry to hear you are so poorly, I hope you get some respite very soon 😘

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