Sorry need some advice and to vent. So have been to the hospital to see my Renal doctor, she took one look 👀 at me on my walking stick and asked what was going on, and I explained to her that all my bone hurt, she immediately told me that I had Renal Bone Disease (Go me hit the jackpot!!) I only see Renal once a year, and have not seen her for 2 years.(she is an amazing doctor by the way)
She done a whole lot of blood tests which have confirmed Renal Bone Disease because of secondary hyper parathyroid, however my rheumatoid factor has come back negative!! While I was at the hospital having my hand injected for CTS, I asked the doctor if it was possible that I didn't have RA, she felt that I did indeed have RA as well as RBD.
Question is it possible to have positive RA factor then have a negative RA factor?
One of the things I'm not happy with is that I see rheumatology every six months and more often in the last 2 years since I had a melt down at the hospital because of bone pain, not only did I feel dismissed but not once have they or my GP considered this is what could be going on even with low Vitamin-D and high phosphate, because my calcium was low normal. I have discovered this is something all Renal patients can get once your GFR goes below 50%.
The other thing is it causes osteoporosis, when I had my last hand X-ray the radiographer said I had osteoporosis, but when I asked the doctor if this was the case, I was told not to be so silly!! as you can imagine I now have very serious concerns that the radiographer was right, I have made an appointment with GP to ask for a Bone density scan done.
Have any of you had this done what can I expect?
As you can imagine I'm really frustrated with the rheumatologist for not even considering this and telling me she thinks I might have fibromyalgia, I have put a call in to see the rheumatologist sooner than next March but not surprisingly they have not come back yet, but I having the other hand injected today so I will ask the doctor this afternoon.
Sorry such a long post but frustrated with NHS.
Anyway put a lovely picture of my puppy 🐶 for you all to see 😘