Today I got up at 10:30. Sat on sofa. Sewed about 15 inches. Have tied up some Christmas tree ornaments. Put out the Christmas candles and hung the Christmas chocolate on the tree.
I have done nothing else, nothing. So why do I feel like I have run a marathon and am completely shattered.
Tomorrow, hubby has a day appointment at local hospital, so I will be sat by his side.
I am getting fed up with this disease!
I know how you feel the last month I've had terrible fatigue every time my wife looks at me on the sofa I'm sleeping , and try explaining to people is a waste off time because they don't understand, my family were a bit like that at first until one day they were in when the occupational therapist was there and explained to them that when they have fatique we'll add 100 times on to it and that's what we have to put up with, hope you feel better soon
Great therapist!!! Maybe we should all take our families with us. I can see it now - "Mr. Smith, and entourage..."
I have to say the fatigue is the hardest part of what is wrong with me. I could cope with all the other symptoms but the fatigue well that is a topic on its own. Hugs from me.xxxx
I have days when I don't even get out of bed; what happened to the vibrant person who thought sleeping was a waste of time? Keep strong; push yourself when you have to, and when you can't ... don't.
A friend
I think that some of the meds we have to take cause horrible fatigue. I felt more 'cream crackered' after taking the dmard than I was off it. Though I was pretty exhausted when my inflammatory markers were high.
The fatigue is awful,I plan so many things in my mind, only to fall asleep on the sofa,having done sod all!Today I am going to attempt making a pot of vedge soup, but the thought of peeling all those hard veggies is already putting me off,they sit there as if to say, go on then try and peel us,you'll pay for it later,soup or sofa, what a dilemma!x
Hi Jacqui - I know your last statement was not intended to be funny, but it made me laugh. I think all of us have been there a thousand times over.
I wasn't sure if you were talking about fatigue or pain and stiffness, but I know I cannot travel any more for more than 30 - 45 minutes because the pain and stiffness reduces me to hobbling and swearing. Although in some ways - that's not bad. At least I LOOK and WALK disabled when I get out of the car if I happened to park in handicapped parking 
If it's fatigue you are feeling, then unfortunately that is one of the 2 - 3 primary hallmarks of RA. Pain, fatigue and deforming bones... oh yeah, and the hour it takes most of us to get around first thing in the morning. And it is not specific that I can tell to a level of effort expended. It just is part of the disease.
I would say to be patient with your body and say nice things to it. I read an interesting article recently about how we self talk. My mother in law was the worst - "Oh, Monica! You are so stupid!" or clumsy, or whatever was happening at the moment that frustrated her. She was a lot of thing, but stupid was not in the mix. I found when I stopped and listened to what I was telling myself, I was talking to me like a recalcitrant little kid. I've stopped and think I actually feel better.
Just be patient with you, and I hope you are having a good trip with your dear hubby.
Thank you. Waiting we hubby, and physio rang to say that they had a cancellation, so appointment is 3:30 at the same hospital that I am sitting in. Yay.
Oh My Gosh! You ARE living right then! Cancellation, same day, place you already are? Not much better than that. Best of luck with your appointment!
ho ho boo hoo
