Infusion day afterwards..............: Well i got home... - NRAS

NRAS

37,012 members45,736 posts

Infusion day afterwards..............

sylvi profile image
17 Replies

Well i got home just before one. I didn't back into the discharge ward until nearly midday. Hubby came to fetch after the canula was taken out and i was told to rest the rest of the day,which i did(ha ha ha i know what your all thinking,yee right) well i was a good girl for once in my life. To be honest i felt very tired afterwards so i did nothing. Had a early bath and bed as i felt very uncomfortable downstairs. I rested in bed and fell asleep soon after ten. I was awake just after four and came down here and had a cup of tea.

Well here is the miracle, it didn't hurt to turn over in bed at all. What pain i am suffering from now is very minor compared to what i had before the infusion. I have some nerve pain going down my right leg from the compressed disc. I didn't expect to be completely pain free and i am not,but i have very little pain and it is mainly from the back. I feel so much brighter and optomistic to be honest. I know i won't be able to go at life lie a bull in a china shop because of all thats wrong with me,but i will be able to do a little bit more than i have been doing. If i can sleep i have always said i can cope and what sleepi had last night was good.

I would highly reccomend getting a lidocaine infusion if it is offered to any of you. I am looking foward to a few weeks of being able to move with very little pain. Hugs to you all.xxxxx

Written by
sylvi profile image
sylvi
To view profiles and participate in discussions please or .
Read more about...
17 Replies
Crusee profile image
Crusee

So glad you have managed to find some relief at last been a long time coming!

Just heed the bull and china shop advice.it will mean that you can do what you have been doing without so much pain but be careful about taking on any extra tasks etc- I know what you're like ,

Pleased its started well and that you got a good nights rest its half the battle.

Stay well,take care.

Crusee

XX

sylvi profile image
sylvi in reply to Crusee

Thank you darling,it was a lovely feeling to be able to roll over in bed painfree for once.xxxxx

Crusee profile image
Crusee in reply to sylvi

Depends who you're rolling over with Sylvi- ha ha

Crusee

XX

sylvi profile image
sylvi in reply to Crusee

Well now that has got me thinking for a silly post,watch this space baby..............xxxxx

Crusee profile image
Crusee in reply to sylvi

Naughty girl.........

Just what did they put in that infusion,was it essence of wickedness?

Crusee

XX

sylvi profile image
sylvi in reply to Crusee

Pmsl,have done the post and i expect you to be the first to answer.xxxxxxxxxx

cathie profile image
cathie

I decided I had to make the most of the good days and it sounds as though you're planning to do the same. Xx

sylvi profile image
sylvi in reply to cathie

I am darling i am going to help hubby get the conservatory ready for the plants to winter over in.xxxx

cathie profile image
cathie in reply to sylvi

Take it steady though! But enjoy the pain free it sounds as though you've really responded!

helixhelix profile image
helixhelix

I remember that moment when I could roll over! I used to feel like a beached whale. So great that the infusion has worked for you.

I have three compressed/damaged/bulging discs in my lower back and what has made the biggest difference is exercises. I do about 10 stretching exercises every day now, which are so simple it's hard to believe they make such a difference - but they do. So now you're not in so much pain I really recommend you talk to your GP about starting some. I started with these NHS ones, and can now do others.

nhs.uk/Livewell/Backpain/Pa...

Someonesmother profile image
Someonesmother

Oh wow sounds like it worked really well. I am so pleased for you :)

sylvi profile image
sylvi

Thank you all very much.xxxxx

Jora profile image
Jora

Very pleased for you, Sylvia. Am I losing the plot?. I can't see what the infusion was. Jo xx

sylvi profile image
sylvi in reply to Jora

Lidocaine Jora.xxx

DC56 profile image
DC56

So dose that mean no washing the sons car or doing the garden ? We all go mad now and then but silvi some of the things you do would make a "normal " person quake love please stat taking it easier you do worry me , hope your husband is doing well too lol ❤️

sylvi profile image
sylvi in reply to DC56

Well DC56 i still like to think i am normal or wish i was. Hubby is is doing ok now he knows whats is wrong with him. He copes better knowing.xxxxx

Angels-delight profile image
Angels-delight

Hi Sylvi, I have Tocizumab infusions each month. I have had 2 so far in Canada and they are wonderful giving you your life back. I am so pleased for you that your infusion worked so well for you and giving you pain relief. Take care Sylvi and make sure you get some rest. Sue xx

Not what you're looking for?

You may also like...

Rituxan infusion day 2

My experience with my Rituxan infusion is that i was very scared to get this infusion after reading...

Tocilizumab first infusion

Hi everyone who has been following my infusion post's, thank you. I had my first last Tuesday and...

Rituximab infusion

Had my first infusion of two today. I have had two previous sets. I was ok previously but today...

Bad day at reynolds towers

Well hello everyone, After being so pleased with painting the garage, i knew i...

What a difference a day makes...............................

Yesterday for me was a great day,best day i have had for months. I went to town with hubby and...