I am in SUCH a good mood, and no one in my 'real' life gets it when I try to explain, so I thought I'd post here and share it with you lot, who'll understand. I hope you don't mind!
I have been on mtx since end Feb, and I switched to injections 3 weeks ago. And I feel SO much better than I did 6 months ago that it has really made me happy. ☺️ My pain is much reduced, my swelling has pretty much gone, my IBS symptoms are gone, the side effects are under control, and my energy is increasing! The last couple of days I have actually felt *well*, for the first time in about five years!
On Sunday, I did about 4 hours of gardening and some housework, AND went for a little swim - and I don't need to tell you lot how much of an achievement that was! Yesterday, I swam half a mile before work, worked 7 hours, came home and cooked tea, helped my son with his revision, went for another quick dip, went to my weekly singing group, and then did the weekly shop at 9:30pm! It is at LEAST 3 years since I have had the energy to do more than 2 different things in a day, let alone all that!
I still have a way to go - my hands, feet, ankles and neck are still achy, and I'm still very stiff if I wake at night and for 30-45 mins in the morning. And that means the disease is probably still not completely controlled, and could be doing more damage. But my new rheumy team has just increased my mtx dose to try to address that, and if that doesn't work, we'll try biologics...
On Friday, these new 'experts' (at Chapel Allerton, Leeds) told me that, if I'd been diagnosed and treated when I first had joint pain in about 2009, I probably wouldn't have needed a hip replacement. The first rheumy thought that too. So I'm angry with my former GP, who did not take me seriously when I described my pain and exhaustion and other weird symptoms, and told her I knew there was something wrong... I am seriously considering suing... But even that isn't interfering with feeling delighted to feel so much better again. 😌
This time last year - even just 7-8 months ago - I was feeling so miserable that I seriously thought that if I died, it might be the best thing, because it would at least mean I wouldn't hurt any more. I thought that once my kids were a bit older (my youngest is 16) there wouldn't be much point to my life, since it had become so limited, and was shrinking further... 😥 It is really fantastic to find I can do things again, to feel possibilities opening up again and to get back some hope for the future. 😍 Here's hoping all of you can find the right treatments, too.