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Will plant base diet heal autoimmune diseases? Leaky gut is just a theroy, it is not proven.

Jan 1990 I was a healthy 23 year old...I woke up one morning blind. My hubby drove me to the ER..Oh no my legs don't work...I have numbness down the left side of my body...The doctors were frantic as I couldn't move my arms...Neurology was called...MRI clearly sees plaques on my brainstem...I am diagnosed with MS...I am hooked up to an IV and steroids are pumped through my body because back in 1990 this was the only drug available.....Relapsing remitting MS is what I have...I'm scared....I spend the rest of 1990 in a wheelchair...I eat the average diet of a 23 year old. Ham and pinapple pizza, Mc Chicken with fries and a diet coke...The only vegetable I eat is the shredded lettuce on my Big Mac...I continued to smoke a pack of cigarettes aday...MS remitts and I add vodka and whiskey to my pizza diet....I have another episode of a MS flare so I stop drinking alcohol because I go on IV steroids....Cigarettes, Pizza and beer is what I live on when I'm not on steroids...MS just "disapears".in 1994...Was it the pack of cigarettes a day, pizza or McDonalds that cured me? ..

Today I am proud to say I am a 49 year old non smoking veggy lover.... So why do I have RA?..

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I stopped eating meat in 1987, and eat a largely plant-based/vegan diet. In my case, it seems to have CAUSED inflammatory arthritis! ;)

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Wow, that's some scary history, so glad things improved.  I personally think alcohol helps lubricate the joints lol! ( I don't have any alcohol on Methotrixate day and am not a lush).    Mmmmmmm  to your question, don't know but we all know women are way more likely to get it than men, lucky sods they are, Men I mean. I have a sister who got it at 19 after 'flu' like event,  stress brought it on for me in my forties and my sister who also got it after very stressful time in her 50's, wasn't supposed to get it if she didn't already have it by then, according to our Specialist.  So much for that theory! I conclude there is a family connection with the daughters in my generation, but of course the brothers avoided it. There hadn't been any obvious history prior to that.

I suspect the wise ones on here will likely be able to give you some answers,  but as for me, the best I can come up with is it's wine-o'clock for me, lol, cheers and good luck!

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Hello Brightangel. I too believe there is a family connection. I have a cousin who has cronic progressive MS and my Aunt has RA.

So you believe stress caused your RA? I was under emotional stress for about 2 years before my MS diagnosis. I was also under emotional stress before my first RA symptoms.

I still have the occasional glass of wine.

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I am absolutely convinced that 'stress' is the malevolent culprit.  Five years of stress was the fore-runner to my RA.  Didn't help that I used alcohol & cigs, to deal with that stress.  Men let stress wash over them; women take it to heart.

Keep your chin up.

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Hiya, yeah I think whilst there was likely a family pre-disposition towards the RA it was chronic, prolonged stress that activated it in my 2nd sister and me. They keep telling us how much stress plays a part in most reasons for people visiting their Doctors and it is considered a modern day epidemic. It's only now that I really try not to give a crap about anything as I have seen and experienced the ongoing damage stress causes.  Yes, occasional Wine / Whine is good for the soul and relaxation.

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brightangel stress and a bad diet was the main reason why I became ill as well and I am pretty sure the fact that I had ear infections as a child also did not help me.

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Hi, yep it does seem  a lot of us get the compounding effect of prolonged stress and poor health causing the R.A.  I suspect you are right about the childhood infections as  it possibly showed up a weakness in your system that remained.

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exactly bright angel.  I also found out that most people who suffer with ear infections are allergic to the food that they are eating so this did not help me and the fact that I was on antibiotics for a long time as a child.  These things seem to of caused a lot of damage to my gut and my microbiome.  I def believe that all of these things has caused some serious damage to my body and why it has taken my body so long to get back to normal so to speak after suffering with ra.

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Hiya, sorry I missed yr reply.  We all know the anti-biotics thing now but as a child we didn't know then.

I have had very few anti-biotics and in fact had been on pro-biotic yohurt stuff for ages when I first started getting stomach/digestive issues and Osteopath said it was the methotrixate as other patients had same.  Changing to the injection version hasn't eliminated it, but maybe lessened.

I think the R.A. just screws with us no matter what and affects all of our body systems, unfortunately.  It makes it hard feeling like we are fighting against the medical profession as well as our illnesses when they deny our symptoms are related to medications etc.

I think it helps having moral support from others with similar difficulties.  Look after yourself, smiley-face!

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I totally agree with you the ra meds/ antibiotics for sure screw our bodys up. 

I am the sort of person who likes dealing with crap on my own.  I just prefer dealing with my issues I have always been an introvert but over the years I taught myself to talk about certain things more openly .. basically what I am trying to say is as weird as it sounds I always dealt with my auto immune crap on my own.

I am hoping that once I have sorted out my adrenal issues I can do a juice fast or a water fast during the day and that should bring down the rest of my inflammation levels and hopefully by then I would of seen my functional health dr but at the end of the day we all need to do what is right for us.

For me I have had to work hard at repairing a lot of the damage that my body has gone through since I was a child I guess.

You look after yourself as well.

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Hiya,

Yeah I know what you mean about keeping things to yrself.  My sister has done that most of her life as she learnt early on in her experiences that people thought she wanted something from them, when in fact she has been fiercely independent so the opposite was true.

Would a juice fast be better than water so you get the nutritional input? Hope you get to see your Dr soon.  True, we kinda become our own

"Medicine Men/Women" lol.  Nobody knows our body better than us. Good luck!

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gees it sounds like your sis had it tough.  I am sorry to hear about what your sister went through.  I am pleased to hear she is independent that is the best way to be. 

thanks well I have followed what the medical medium said about juicing celery etc but I just want to see how I feel on a water fast.  I mean I may not even get past the first day and of course I want to do it with the supervision of my dr but I do believe that doing a gentle cleanse even if it is just a detox or a liver cleanse or whatever can be great for the body and get rid of all the toxins.

I will let you know how things go for me.  I am a difficult patient to treat but I am not in pain or nothing just have high inflammation levels.  Maybe it is due to change my diet .. eating more oranges I dunno anyway we will see what happens.

thanks I am pretty much seeing a dr every couple of weeks at the mo. I either see the rheumy or integrated dr but if things work out with the integrated doc I will prob stop seeing the other rheumy.  He has pretty much told me that I am a difficult patient to treat and he is always rushed when he sees me.  I guess though that is the nhs for you.

Take care of yourself.  Nice talking to you.

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I too feel rushed Kale when I talk to my rheumie. I fell ashamed that I'm in clinical remission yet, after 17 months.

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I am sorry to hear that.  If you need more time with him then demand it.  I am in a different situation at the mo I am pretty much in and out of the dr's every few weeks but the reason why I was told they don't have enough time for me is because of the amount of time I have spent at the doctors is prob not very normal but with saying that I am lucky to be seen as and when I am lucky that I can seen by my dr so often.

He prob also just told me that he does not have time for me cause he knows I always ask questions and bang on at him, which I guess I am entitled to it but he has told me that he can't keep up with all the patients he is seeing at the mo.

However it is great news that you are in remission.

Congrats.  Take care of yourself.  :)

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Hiya,

Thanks for getting back to me. Yes my sis has had it about 47 yrs and consequently has had a very small life as a result, very sad.

Have you always been difficult?????? lol. Just kidding. Yeah, I don't do well with meds, even reacted to contrast dye for scan. Sounds like you are your best Medicine Woman lol.  Yes, they always seem rushed here too and you kinda feel you have to crank it along so they don't get pissed off.

Good luck with the cleanse.  Mmmmm the vitamin c thing is interesting. Would appreciate knowing how you go, thanks. Nice chatting with you also.  Seeya.....

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Darling i am sorry to hear you have both ms/ra and to be honest there is no logical reason why we get these diseases,but i am pleased to hear yoiu have stopped smoking(i wish my two and dil would stop) I gave up drinking 14yrs ago due to my health (i have a hiatus hernia) and it was the best thing that ever happened to me. xxxxx

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The strange thing is that I have had no MS symptoms since 1994 and I had a bad diet that included cigarettes. I quit smoking "cold turkey" and stopped drinking when I was pregnant with my daughter in 1995. Never had the urge to restart...Looking back I wasn't an alcoholic, I was just a foolish girl who liked to drink :) , and cigarettes kept me slim. Not a healthy was to keep your figure, ...but what can I say? I was 23.

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I had autoimmune Arthritis from an early age to 7 years old it went into remission and came back a few years back as RA . I personally don't think these things go away no matter what we eat or drink however I eat a healthy diet and steer clear of processed foods and sugar and sweetner these make me feel far worse and can send my body into a flare .

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Hello Junerose. I believe that some people are prone to autoimmune diseases. Everyone has there own trigger. A persons trigger may be diet while another persons trigger may be stress, etc.  We are all different so we all have different triggers. I eat a healthy diet now because it keeps me healthy. But sadly it has no effect on my RA symptoms :(  I'm sure diet helps a lot of peoples RA. I find relaxing helps my symptoms.

All the best to you

Sue

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I try and stick to a healthy diet oily fish,no red meat at least 7 of the 5 a day ( if that makes sense).fruit and veg.I take cod liver oil supplements. And have celiac's so gluten free.I do not smoke and gave up the wine  ( I used to. smoke )

I have not noticed any improvement but it helps me feel as if I am giving my body the best shot and it feeds my need to be in more in control.

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I have a friend in her 80s  - her mother-in-law was diagnosed with RA.  The mother-in-law then started eating only white bread and chicken and after  a year or so it just disappeared and she was fine.  Before RA the mother-in-law had a good diet eg lots of home grown veg, no processed food etc.  Its all beyond me.  The only thing I know that helps me is exercise and keeping my weight down - what I eat doesn't seem to do anything.

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Hi lornaisbel. Strange isn't it? I wrote this post because I'm tired of people giving advice on how to cure their autoimmune diseases by diet. I am sure that for some people this may be true, diet can effect autoimmune diseases activity, but it does not help mine. I believe my MS burnt itself out because it just did. I was lucky and I played no part in "curing"my MS. I was one of the 5-7% who has the benign form of  MS after 22 years being symptom free.

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Picking something we did in the years proceeding a diagnosis and deciding it must have caused the disease isn't a very reliable way to identify trigger factors.  And I think we are usually talking 'triggers' for these diseases rather than causes, as a genetic predisposition has to be there in the first place. 

I think it's important to eat a really good, varied diet for all sorts of reasons.  There's little doubt that junk food etc. does mess us up in a whole host of ways and I expect a very unhealthy lifestyle does trigger autoimmune disease sometimes.  However over-simplifying leads us down all sorts of blind alleys.  For example, I've heard that our health may be more influenced by our maternal grandmother's diet than our own ...... that is probably unproved but it suggests how complex the full picture may be.

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I don't know about *more* influenced, but our health is indeed influenced by our maternal grandmother's health and nutrition. That's because a female foetus already has all its/her eggs fully formed in her uterus before birth. So the egg that makes up half of you was already inside one of your mother's ovaries, when she was a baby inside her pregnant mother, and affected by what your grandma ate, drank and did! Interesting, eh?!

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In that case I'm completely stuffed.  My granny's idea of a healthy lifestyle was smoking & drinking in the fresh air.  

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It seems wrong to 'like' that!

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It's my quirky sense of humour flow4. I didn't mean to offend. If I did, I'm sorry.

 I'm just amazed at how some people can eat, drink,  and do whatever they want and live a long life. Blows my mind.

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No, no, not you! :) I meant it felt wrong to like postle saying "I'm completely stuffed"!

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Lol!  It's okay!  When my mum met her future mother-in-law they got on like a house on fire, almost literally.  For example, they'd have smoking competitions long into the night.  If the last few generations could see me now they would think I was the very picture of health, relatively speaking!  

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Postle2, It sounds like you and I have a very similar disfunctional history. How many people overcame their childhood?....I was born with a broken plastic spoon in my mouth, we couldn't aford tape.....How many people can say that their grandma was a hooker?...I'm not proud to say that my granny made her money this way..

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More people than you might think, Sue. Selling sex was one of the few ways women could earn their own money and be independent, a generation or two ago.

I'm sure childhood trauma is significant for some people. A month or so ago, I came across this research...

...   

Title: Negative and positive life experiences in patients with psoriatic arthritis.

Citation: Rheumatology international, vol. 33, no. 6, p. 1587-1593, 1437-160X (June 2013)

Author(s): Simonić, Edita,Peternel, Sandra,Stojnić-Soša, Liliana,Rončević-Gržeta, Ika,Prpić-Massari, Larisa,Massari, Dražen,Periša, Darinka,Cabrijan, Leo,Kaštelan, Marija

Abstract:

Recent data suggest that childhood and adulthood stressors may play a significant role in the development of an autoimmune disease. The present study explores the relationship between psoriatic arthritis (PsA) and positive and negative life events during childhood and adulthood in psoriatic patients. Forty-five patients with psoriatic arthritis and 101 controls (patients with skin conditions considered to be "non-psychosomatic") were enrolled in the study. All participants completed a specific questionnaire measuring traumatic life experiences [Traumatic Antecedents Questionnaire (TAQ)]. The TAQ assesses positive personal experiences (competence and safety) and negative personal experiences (neglect, separation, secrets, emotional, physical and sexual abuse, trauma witnessing, other traumas and exposure to alcohol/drugs) from early childhood to adulthood. The patients with psoriatic arthritis exhibited lower mean scores of total positive experiences during late childhood (latency) as compared to the control group. Negative experiences during four developmental periods appeared more frequently in patients with psoriatic arthritis than in the controls. The most frequently reported negative experiences were neglect, emotional abuse, physical abuse, sexual abuse, alcohol/drug abuse and other traumas. The present findings add evidence to the relationship between retrospectively reported childhood experiences and psoriatic arthritis. Furthermore, a high amount of reported emotional and physical abuse occurs in patients with psoriatic arthritis during latency and adolescence.

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Wow...I'm speachless. I need to research this.... I am a 49 year old woman that is madly inlove with my 51 year old man. We have been together for 30 years...No drama in our relationship...but my childhood?...I have always said my parents put the "dis" infront of the word "function"...wow I need to research this...

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This is all interesting - I'm the child of holocaust survivors, and that didn't provide a good role model for parenting. Other end of the piece of string as your histories seem to be about lack of parental emotional control, and mine the absolute opposite.  Anything less than being pushed into a gas oven was not to be complained about or commented on. 

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That's an astonishing piece of information. Going by what I know of you from your posts, they raised quite a daughter after the total hell they experienced.  I hear what you say about control. I can't imagine how a person handles that emotionally because it must be harder to criticise them than it is for us children of rather chaotic parents. However I rather suspect that you say it is what it is, it was what it was.  

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This discussion has gone off in a very interesting direction!  I think we do indeed have a fair bit in common!  My family was a right mish-mash of class and income, quite extreme contrasts, but what almost all the members of my parents and grandparents generation had in common was that they lived as if they did not expect to make old bones.  And lo, they did not.  

For a whole host of reasons our generation  is different in that so many of us aim to stay active or at least engaged with life well into our later years .... even when we have a chronic disease to contend with.  I don't care if my granny messed up my genes ... I've got other advantages on my side.  Don't be ashamed of your grandma, if I wasn't on Mtx I'd drink a toast to her!

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Ah now. Selling your own body for sex is one thing; selling your child's is entirely another. I'm sorry, Sue.

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Also .... I think that the fact that you're now living a much healthier lifestyle has got to be good, well I've already said as much I know. But what I want to emphasise is that cleaning up our acts, assuming they need to be cleaned up, is one thing we can do to help minimise the effects of the disease and also, possibly, to help our bodies to cope with the drugs. We may never know whether our disease would be worse if we propped up a bar every evening, smoked like chimneys, took no exercise and lived on frozen pizza but there is a whole lot of research that suggests human bodies do not exactly respond well to such a regime and our bodies are already under stress due to the disease.  

 I too do not like all the claims that eating certain types of diet can CURE rheumatoid arthritis and other autoimmune diseases. Overly-restrictive diets based on little other than internet testimonials concern me.   For example there is fairly extensive research showing that we in the West are often lacking in Omega-3 fatty acids which are found in oily fish and dairy products, amongst other things.  

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Hello Postle2. I had unhealthy eating, drinking and smoking habits for about 5 years of my life. My drinking and smoking started in 1989 after the death of my baby ( doctor cut his skull during my c-section). I guess I figured, why not be a wild girl instead of the "goody goody" responsable girl that I was before his death?...Not a bright idea, but I was 23...

 The reason I wrote this post was because it is wrong to say diet cures autoimmune. I'm sure for some diet has an effect on thier symptoms. Sadly it has no effect on mine. I became a vegetarian about 2 years after my MS symptoms went away. I would never promote smoking and pizza as a cure for MS. My MS burnt itself out. I was lucky that's all.

Take care.Sue

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Thank you for the post. Very much needed.

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Oh I did realise you were not promoting these things!  Though I can see that may not have come across.  It's so good that your MS burnt itself out.  My mum had MS .... it scares the hell out of me.

And yes, me too on the wild girl front, though truth to tell it lasted pretty much into middle-age.  I can see some reasons for the way I was too.  The loss of your child was terribly such a terribly sad thing to happen, that must have been extremely traumatic.  I am very sorry.  In my book that excuses pretty much anything though I doubt you're apologising for a bit of wildness, or at least I don't believe we should.  

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lol no worries :)  Promoting pizza and smoking? Crazy eh? lol

MS is very scary. When I was going through it,  I had no access to a computer and I think the internet was just starting up. In away I'm glad I had no access because I was able to be naive about the disease. It wasn't until around 1998 or so that I looked it up on the internet.   I still keep up on medical advances on MS. Thank God there are treatments available today.   How's your mom doing? 

 I wish you and your mom well.

Sue

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What an awful, awful thing to have happen to you and your baby, Sue. I'm so sorry.

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Both my autoimmune disease happpened during extreme traumatic emotional stress. I truely believe for me stress was my trigger. I mean 2 different autoimmune diseases over 24 years apart?... I would never claim stress is the reason for everyones autoimmune, but for me I believe it was. I think this is why I hold out hope that my RA will "just disapear". 

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Yes, me too. I also had a year of *extreme* traumatic stress, and began to get really ill...

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Someone once suggested I gave up all my medication and went into nuts, seeds, vegetable diet to cure the RA and Lupus.

I believe sticking to a combination of medical intervention and trying to look after your body is my way forward 

Quite frankly I am not brave enough to give up the medical treatment I receive, I could not cope with the increased pain.

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Hi Suzannedale

I so agree that if diet could cure RA the NHS would have figured out a way to reduce the medications bill years ago. My RA is positive and my GP said its autoimmune like the Thyroid disease and therefore genetic not much I can do about that except shout at mum and dad in Heaven. I'm also Celiac and have Pernicious Anemia,  so gluten intolerant both also thought to be auto immune as well, so coped a lot but the only one of my siblings that has, so I reckon I got their share too.

Strangely my GP said that once the auto immune munchers destroy something they move on hence one aspect follows another. I have a great and very funny GP. I sort of picture auto immune as pac men!  I'm so  lucky though as have low cholesterol, good blood pressure and not diabetic, so I'm a fit person in general if you discount the B12 jabs, vic D capsules, Lefolodamide, Thyroxine etc. I walk miles, dance and enjoy life.

My RA is not really a problem as the Leflodamide has it well under control, I feel great,  years younger and have no pain or inflammation now. So am making up for lost time as its been a journey to get too this point, and no way am I giving up chocolate or fudge,or cheese !! lol x

I shall grow old with high heeled shoes as the left foot is full of Cortisone injections, Dr Martyn boots with thick tights and ombre pink hair( cost a fortune). he he - so not 62 but 26 several times over.

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Keep on dancing with your high heel shoes!!! You go girl!!!

I miss my fancy shoes as my toes and the ball of my feet are quite deformed....But I'll gladly put on a dress and dance with my runners. LOL

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I've had Morton's Nuroma's removed twice now (privately) and a few cortisone jabs in the soles which have worked well. Shame is on the NHS they make people  wait so long so as it really improves the quality of life. I see same guy privately and on the NHS, he's very good and it helps a lot to get treatment quickly. I'm  certain that its because I've had quick treatment that my RA is under control.

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My friend has started to reverse her ms symptoms naturally by eating a raw food vegan diet and she also gets help from an organization .. think they are based in America for her ms.. she is also seeing a few other people that help her with her ms but I don't know there names.. can find out for you if you want.

I should say that my friend has never gone on drugs for her ms and even though she lives abroad and I have not seen her she is doing great since going down the alternative medicine route for her ms.

all autoimmune diseases start in the gut.  A lot of doctors are now talking about this.  I can't say why you have suffered from ra but I will say this that I have reversed most of my ra symptoms by seeing an integrated dr and eating a plant based diet.  

there are many versions of a plant based diet that one can follow so what I eat may be completely different to what some body else on a plant based diet. 

I am so sorry to hear that you have suffered with so many illnesses.  I do hope that you get your health back on track soon.

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Kalel, there is no proof of this, it's all anecdotal. Many of us who have had this disease for years have tried every diet going. There is no proven miracle cure. Some adjustments to diet may help some individuals. It is wise to eat healthily and look after your gut. There are other environmental genetic, viral factors which in some cases play a part. There is ongoing research in this field, and yes it has been shown that fish oil can help with symptoms. Bear in mind that some folk have become very ill eating only a raw plant based diet

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I really have no time to dispute this with anyone.  So all I will say is that coming from someone who has also had ra for a long time I will agree to disagree with you.  You do what is best for and I will do what is best for me.  However like I have said a million time on this forum already I have no intention just being a sitting duck and waiting for someone to find a drug that may work for me cause so far nothing has and apart from a few hic cups along the way I am perfectly happy seeing a holistic dr and finding another way to help my ra.  All the best to you.

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Hey Kai-An I saw this on facebook earlier.  Have not had time to listen to it.  Sorry not had a chance to reply to your message will do it when I get home later.  Had a crazy week.

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Hello Kalel it's great that your friend is eating a raw food vegan diet and it is helping her MS. Diet and nutrition are very important. Some people claim diet directly improves their condition. You and your friend are the lucky ones. Not everyone is. I wish diet could improve mine. My MS went into remission on it's own. I refuse to say cigarettes and pizza cured my MS.

To claim all immune disease start in the gut has not been proven. Where is the documented proof? What University? I truly want to believe it is  as easy as eating a raw food vegan diet. If eating used kitty litter cured RA I would grab a spoon.

The University of Washington state has just published a paper on the health benefits of green tea to treat RA isn't that exciting?

news.wsu.edu/2016/02/16/145...

I wish you and your friend good health and I am happy that diet is helping you both.

Take care

Sue

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This is not about RA or even autoimmune diseases, but it is about gut microbiome, and I think it's very interesting: ted.com/talks/rob_knight_ho... 

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Quite interesting.  Why do RA patients have more gut bacteria Prevotella copri ? Or I should say why does this small group of people tested have more P copri in their bowels?

australasianscience.com.au/...

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I find that hard to believe as auto immune is a genetic condition or so my GP said thus its in your system before your even born.It obvious that healthy eating helps everyone as does weight control, enough sleep and exercise.

As I told my son last year I'd eat broken glass if someone told me that tomorrow I had no pain, as it is Leflodomide does that and its great.As for raw food give me a plate of chips anyway as I don't eat gluten and that is my secret weakness along with chocolate. 

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I tend to believe that autoimmune is in your genes too. I just found this study interesting. I'd eat used kitty litter if it cured RA. :)

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Sue no one in my family has suffered with an autoimmune disease so I don't believe that is always the case, think that in some cases it can be in the genes. 

I do know that the reason why functional health dr seem to be helping more patients is because they are looking at everything that is going on in the body not just the joints and the fact that the patients might be suffering from ra etc

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Sue if you want to find out a bit more out about ra then I would check out some functional health drs or look at what some of the vegan drs have to say about ra.

I don't know why a dr would not talk about the gut and microbiome when they are treating patients but as far as I am concerned all disease starts in the gut.

Look up people like mimi kirk she has been the only person who has not gotten sick due to eating a raw food diet. 

and dr greger on nutritional facts.org. He also has an amazing you tube page.

also the medical medium talks about why we get ra in his book

as far as I am concerned what my dr will tell you about ra and what my integrated doc will tell you about ra is very different.  Why do they do this I dunno but docs that look at things from a functional health perspective seem to see autoimmune disease very differently

all I will say is that I have done hours of looking at the science for ra and listening to things and we all need to what is best for us right

I am really pleased to hear you  no longer suffer with ms that is great news

I wish you all the best with everything as well

if you want to know more about the human body well sign up for some health summits online.  I never know when they are running but I do know that if you have a facebook and look up people like dr mark hyman etc they are running summits all the time and I have found that it is a great to educate myself about the human body etc.

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I stopped smoking in December 2014 in February 2015 I was diagnosed with RA I still think it was a trigger however, here we are my feet hurt my shoulder has frozen again for about the3rd time this month, methotrexate  poisoned me last year, I'm loosing my ability to work offshore, put on almost a stone and a half thanks to prednisone , sulphasalazine is doing nowt, I'm so tired all the time I'm in pain almost all day, but still alive if you call this living :-) on a plus side I'm seeing my consultant in a week or so (first time in a year) and I'm getting married in July to my fantastic girlfriend Sharon 

Phew needed that, keep smiling guys, makes all the difference  

Chin up everyone :-) 

Pete 

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Sounds rough and MTX made my hair fall out so on Leflodamide which is great. Lots of energy no pain and no swelling at all. I feel back to normal now and so lucky. But so are you as you have wonderful wedding to look forward too. x

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Inherited predisposition to autoimmune diseases?     I know with my family history, it would have been highly unlikely that I would have got away without at least one autoimmune disorder (I actually have three diagnosed ones).

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Wow, that guy knows how to waffle! What all of that long speech boils down to is "Don't come off your meds because there is good scientific evidence they work. Use diet as a complement to that - I suggest vegan - but be aware there is no clinical data to show diet works, and everyone is different, and you'll need to experiment to find out what might help you". :D

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With this disease no one size fits all.   Some drugs suit some others not.  Some diets will suit some others not.  Everyone is happy when someone finds something that suits them but to have it pushed that this is the cure - whether medical or diet is not helpful.

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farm I totally agree with what you are saying and I don't think there is a one size fits all approach that we can take for ra but I will say this going off topic slightly I met a young lady she now makes you tube videos about here reversing her brain tumour through a raw food diet and I personally believe that when this sort of stuff happens it is amazing to think that what the body can do.

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Am I reading something saying a brain tumour is reversing because of raw food ? I'm speechless and not going to comment further as my tolerance is being challenged. All I'd add is you might be right up the date you get a huge PE or DVT which kills you as RA has a lot of risk factors which if untreated can kill. 

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Some folk swear by Paddison program and preach and sell it to anyone who will listen and do not listen to folk who have had bad experiences with it  and seriously compromised their health and well being.  If folk want to try it then fine do so, but don't push it to others for whom it may be seriously detrimental.

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So sorry you're going through health issues. It is frustrating to suffer, and have no sure cure.

But, in response to your title to "prove it", please see this link: ncbi.nlm.nih.gov/pubmed/221... It is about leaky gut being the cause of autoimmune diseases for those who are genetically susceptible.

As for cures: there are documented cures, especially SCD (specific carbohydrate diet) that work for many people, and for a myriad of autoimmune conditions. Most of the effective treatments (based on patient testimonies) that I have seen are from dietary and lifestyle changes.

There will never be "proven cures" because dietary and lifestyle changes are not patentable drugs. You can follow a protocol from a specific program with support, and find out what works, what will heal YOUR intestines, YOUR gut, stomach, etc. It is not the same for everyone. We all have different food intolerances.

Being a vegetarian is not a cure-all. Best wishes to you.

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Hello mam

What auto immune disease do you suffer with? If you have the cure for autoimmune diseases then you should notify the World Health Organization (WHO) You should be able to win the NOBEL PRIZE this year for discovering the cure of autoimmunity. I look forewards to reading your name in the paper. Congratulations.

Leaky gut syndrome is a theory. There are no documented cures of MS, RA and other autoimmune diseases.

Take care

Sue

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Hi Sue - I think you misread my post entirely.

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The link is from US National Library of Medicine National Institutes of Health which actually has documented the cause - it is not a theory.

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.Here is an excerpt from your link that you sent form the US National Library of Medicine. Notice the words "Suggest" (2nd line down).

....This new paradigm subverts traditional theories underlying the development of these diseases and suggests that these processes can be arrested if the interplay between genes and environmental triggers is prevented by re-establishing the zonulin-dependent intestinal barrier function. Both animal models and recent clinical evidence support this new paradigm and provide the rationale for innovative approaches to prevent and treat autoimmune diseases....

I'm glad that this research is being studied, but it hasn't been proven as a fact yet. If and when it is proven, the world health organization (WHO) will recognize it.

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I don't mean to sound aggressive. I'm sorry If I come across that way. I welcome the scientist to prove this theory as it does make sense to me. It just hasn't been proven yet. The link you sent me says the word "suggests "

They are still trying to prove the theory.Maybe in the near future it will be.

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Leaky gut syndrome is a term usd by holistic world of medicine, not the mainstream medical profession. However there is agreement on gut microbiome. RA patients have an excess amount of the gut bacteria called p. copri. This is a new exciting area that is under study.

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Leaky gut is no longer "just a theory" Latest Harward research has proven this. Have to look up the link!

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The FDA, Health Canada and the NRS does not recognize Leaky gut syndrome. It is a holistic view, not recognized in the medical mainstream. Nor is it recognized by WHO (word health organization)

nhs.uk/conditions/leaky-gut...

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Your link's not working Sue but I'd read it some time ago & bookmarked it.... as you say nothing's set in stone yet as far as the NHS is concerned so it's considered a proposed condition nhs.uk/conditions/leaky-gut...

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