Just over a week ago I went to see my local specialist, my nurse had written to him requesting to see me as I was not having much luck with the various dmards. I have seen him before and always feel that he has got a short attention span, maybe got adhd something like that. After asking how I was, he told me that it was unusual to react badly to 3 lots of dmards, and he thought it was mind over matter!!! When I stopped him right there, he told me that I misunderstood what he was saying, and that I was expecting them to fail before I had tried them. I was quite incredulous that a man who barely knows me and is a specialist would come out with such mumbo jumbo. I am still trying to think what to do next. He has put me on yet another dmard, a gentle one he told me (hydroxychloroquine). When on mtx, I always got bad blood test results and in the end it affected my breathing, with leflunomide I lost a huge amount of hair and weight. He told me that he didn't think the breathing was anything to do with the medication that was just me, strange as I got better very quickly once I came off it. I am at a loss as what to do with this kind of treatment, it doesn't give me much hope that I am being taken seriously. Meanwhile I continue to hobble around with elephant knees and must add that I am the least likely person to say such a thing to, I have tried all manner of things (as we all do) to try and help with the RA, and am open to all suggestions.
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