Meltdown mode : On Sunday I was feeling extremely low... - NRAS

NRAS

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Meltdown mode

Sweetheart0377 profile image
13 Replies

On Sunday I was feeling extremely low and fed up of being in pain , then I get a phone call from my rheumatologist ( yes on a Sunday , I'd phoned him 9 days before as sat in a&e for two hours to be told they can't help me need a specialist as I'd ceased up ) so he says can I help , well what can I say I hit the roof ,🙈. Never on my life would I ever yell at a professional but boy did I yell at this guy . I had for ro the point where I really didn't care of the consequences that followed . I live in severe pain daily all the ra drugs have terrible side effects so what could be worse than all this . I told him exactly how I felt and how disgusted I was at being made to feel like an inconvenience or burden , did he really think I have nothing better to do with my time . If I could find any other way of sorting the ra out I would but everyone always says YOU NEED TO SEE THE SPECIALIST AS WE CANT HELP YOU !. So yes I shot both barrels at him . Feel a bit of a fool now but so pissed off as being fobbed off , I want to get back to being the old me as best I can . Does anyone else feel like this too ??

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Sweetheart0377 profile image
Sweetheart0377
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13 Replies
keeta profile image
keeta

Bless you .l think we can all agree to feeling like that many times.frustration pain and tiredness.will do it .sometimes we feel like we are on a roundabout .we feel depressed. Let down.and it feels like no one cares.i can hold my hand up and say i.ve had some really low points .and come online kicking and screaming. and lovely people here understand and you can talk your problems through.and you do feel a fool after .but thats the nature of r/a . It can bring you to a very low point. But sometimes thats what we need to get us up again .talk to your doctor .take a deeo breath .explain how you feel.

be tough.

Bet you feel better for shouting .take care love .xx

Sweetheart0377 profile image
Sweetheart0377 in reply to keeta

Thank you for your kind words , they really do help xx

Nettac profile image
Nettac

Oh yes!

What was the outcome? Did doc say anything useful, or offer another treatment?

I shout at a lot of trees. I'm well known for it!

Sweetheart0377 profile image
Sweetheart0377 in reply to Nettac

The out one was I'll see you in October , which doesn't help now . So yes fobbed off yet again . 😡😡

sylvi profile image
sylvi

I think we all feel like we want our old self back again,but it is what it is and we have to get on with it. I so feel for you and it doesn't sometimes if they get it in both barrels they need to know how your feeling darling s don't beat yourself up for letting rip at him.xxxxx

Sweetheart0377 profile image
Sweetheart0377 in reply to sylvi

Thank you for your kind words it means a lot xx

Barrister profile image
Barrister

Did he not at least offer you a steroid jab to try to ease the pain a little?

Clemmie

Sweetheart0377 profile image
Sweetheart0377

Nope see you in October , my appointment is not till the 12th . Great help !!

Sweetheart0377 profile image
Sweetheart0377

and just as I thought I things would get a little better now the washing machine has packed up 😩😩😩😩

nomoreheels profile image
nomoreheels

Make an appointment with your GP, ask for a steroid injection to get you through to October. It's inhumane to be left in such pain & coping with side effects (you don't say which or the meds you're on but if nausea's one ask if an antiemetic can be prescribed. Alternatively can you present yourself at where your Rheumy nurses are based?

Sweetheart0377 profile image
Sweetheart0377 in reply to nomoreheels

Tried that only a specialist can give a steroid injection , luckily I missed the nausea , hands and elbows keep seizing up like day one so obviously not on the right doseage of ra drugs .

nomoreheels profile image
nomoreheels in reply to Sweetheart0377

Try bathing in Epsom Salts, or just your hands if getting into a bath is difficult, that can help seized joints. Hot or cold can help too, I'd be in a mess without my electric foot warmer & heated blanket. Anything you can do to help yourself at this time is worth a shot.

Can your GP not even prescribe an NSAID for you?

Beverley-NRAS profile image
Beverley-NRAS

Hi Sweetheart,

I am so sorry that you are feeling so much pain and are being left so long. It isn't right. I hope one of the links below can help:

britishpainsociety.org/

painconcern.org.uk/

escape-pain.org/

arthritisresearchuk.org/sho...

arthritiscare.org.uk/managi...

britishpainsociety.org/stat...

Hope you feel better soon

Beverley (NRAS Helpline)

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