Joint pain, like shards of glass in the joint - NRAS

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Joint pain, like shards of glass in the joint

jointpain profile image
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Never written in this NRAS section before, but here goes. For years I have been unable to walk without pain in my knees, if I persevered it felt like the 'shards' blunted a little but it would come back. After some research (on the 'net) I convinced myself it was "Gouty Knee" I even suggested this to my useless, sorry worse than useless Doctors but as there is no swelling at all to see, and I had gone to see them over chronic kidney pain, and two items are not allowed to be consulted on in one visit, Yes Llangollen I do mean it. I was asked to go away and have blood tests for my kidneys ( which came back as normal!) I am now awaiting an ultrasound scan of said kidney(left) Anyway being so fed up with the pain from kidney and knees and the scan is not till December, I googled and googled until I found a link between My diet (Ceoliac) and Knees and kidneys and found I a have been having too much protein, form the oily fish and Cod I eat as I cannot seem to digest meat, so I was replacing meat with fish. Two weeks ago I was in such pain I stopped eating fish altogether and within two days my Knee pain and kidney pain subsided to such an extent that I am convinced that the not very high protein diet I was on was causing the pain. I still have an egg or two each day and have calculated my protein intake to be a little below the 60 grams a day charts seem to suggest I need.

If I can build up the muscle loss from the real lack of use from around my knees which are getting stronger every day I reckon I could be running for the first time in 30 years! So a low Protein Gluten free Rice eating vegetarian diet Alcohol fee diet for me then!!!! And people say I am awkward!!!

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jointpain
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6 Replies

Hi joint pain. I'm glad you seem to have found the answer to your problems by yourself - great news and I do hope you are jogging in no time.

I was told by an acquaintance a few years ago, shortly prior to diagnosis, that I should stop eating nuts and my problems would disappear. My GP commented that, if I did suffer from gout rather than RA/ inflammatory arthritis - I might indeed find that cutting foods which have a high content of uric acid could help enormously. Worth a try he agreed, especially as my dad suffered terribly from gout. I tried it but sadly it made no difference at all. RA is an autoimmune disease but gout and osteoarthritis are not.

So perhaps you did have gout after all but I very much doubt you suffered from RA. Would that it was so simple a disease to cure!

babssara profile image
babssara

Oh Jointpain, You are a breath of fresh air. I could not stop laughing whilst reading your post. My sentiments entirely. My sister moved to North Wales about 2 years ago. She's had kidney removed, both adrenal glands removed and the service, follow ups, and multi-discipline meetings!!!! They don't exist in Wales apparently!

Have a lovely day, enjoy your new found freedom and "sod" the doctors, who needs then? (unfortunately, we do, and are grateful to have them (I think the do provide a good service majority of the time).

Babs x

lornaisobel profile image
lornaisobel

Hello - Im glad some one else has a ' worse than usless Dr and I agree diet is very important and a little research goes a long way take care x

jointpain profile image
jointpain

Thank you for your replies so far! I am pretty sure I haven't RA as my other joints apart from my SIJ and hips and one elbow are not affected, and the pain does ebb and flow depending on whether or not my hair is long or short? or I have been stupid and lifted something heavy, or stood around a lot. I did have small ops on both knees privately 11 years ago for bits of loose cartilage, and was told they wouldn't last long.

The kidney removal sounds horrific babssara. I am sure that I couldn't trust my doctors enough to allow them to remove a splinter;0)

Just had a wonderful egg chips and peas for my tea, after all it is Wednesday! (and cider vinegar) and later home popped popcorn with a teaspoon of brown sugar.

I've remembered what my very good former GP told me now - the food group to avoid with gout is called prurines.

"Avoid meats such as liver, kidney and sweetbreads, which have high purine levels and contribute to high blood levels of uric acid. Selected seafood. Avoid the following types of seafood, which are higher in purines than others: anchovies, herring, sardines, mussels, scallops, trout, haddock, mackerel and tuna. Alcohol."

Gout diet: What's allowed, what's not - Mayo Clinic

mayoclinic.org › art-20048524

Stephpz profile image
Stephpz

Well done for sussing it out! Hope you are running fit soon. Im able to run and swim pain free after eliminating gluten from my diet so I get how amazing it feels :)

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