Hello, its me!

Well Hello peoples.

I have been a member for a few days, so I thought I would introduce myself.

I'm Jayne, I am 50, I have a hubby called Dave, a Staffy called Libby and 2 beautiful grown up children.

I run my own business from home in the North East and am a Gemini, I practice Feng Shui and have a bit of an interest in crystals and herbology.

Oh, and I nearly forgot, I was diagnosed with SeroPositive RA in April this year.

I am currently on 20mg MXT tablets on a Tuesday (!!) - tablet tuesday as it is currently known in our house.

I have bloods every week, as Im not too well on the tabs, and I am at the Rheum Clinic next week for a Meds checkup as there has been little improvement on my joints and, to be honest, I feel crap most of the time.

So, will keep you in the loop as to whats happening with me, and look froward to hearing whats going on with you.

I'm pleased to have found you, all of you, and look forward to hearing about you.

Bye for now

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16 Replies

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  • Hi Jayne

    Welcome to the forum. Everyone on here is helpful and very knowledgeable. So sorry to hear of your diagnosis though.

    I was diagnosed in 1987 with seronegative RA, followed quickly by Sjogren's Syndrome. I'm now seropositive and also have vasculitis. I'm on Prednisolone, MTX 20ml injections and Leflunomide as well as meds for my other 'problems'. Was on 25ml MTX, but it has been reduced as my liver enzyme has been erratic for several months now.

    Have you asked your consultant about having injections instead of tablets, as most of those who had swapped have less nasty side effects. Also, how often do you have folic acid? I take mine every day except Thursday (MTX day). I hope your rheumy can improve your condition by either adding more DMARDS to the MTX, or trying other things such as biologics. xx

  • Hey my first contact!

    Hope you are well, thanks for taking the time to read and share.

    This is such a great idea.

    Take good care

    J x

  • Welcome darling to a lovely group,someone will always speak to you one way or another.xxxx

  • Thank you my lovey

    That's really kind of you, hope you are well.

    J x

  • I will be when i get this op out of the way darling. xxxxx

  • Hi Jayne-- welcome to the site. I was diagnosed with sero negative RD 12 months ago-- the people on this site were invaluable then-- as they are now. Ask away -- someone will be able to help. ☺

  • Hi thank you

    I have seen some really good posts already.

    Hope you are well

    J x

  • Welcome from me too Jayne, happy to have you here though not for the reason you sought us out. I hope things start turning around for you soon & your clinic appointment will be productive. Let them know how it is & possibly if the tablets aren't suiting you they'll switch you over to injections. I started MTX tablets the second year following diagnosis but been better on injections, 20mg just now & 6 folic acid a week so don't despair, many people tolerate injections better. Even if your meds need changing there are a few for your team to try.

    I'm also seropositive, diagnosed in 2008 & not doing too bad at all considering. I also have OA which for me is more problematic just now.

    Anyway, pop on as & when or if you just want to chat. There's always someone around to support, advise & share experiences. :)

  • Hey, thank you for taking the time to read and reply.

    What a lovely pic of a dog.

    I'm sure I'll fit in well here - nothing better than a cup a tea and a virtual natter to keep us sane.

    Take care

    J x

  • Haha my cover is immediately blown An_264266

    Thank you for taking the time to read and reply,

    Take care

    J x

  • Welcome to the site Jayne, though I would of loved to meet you on a site for lottery winners lol. My name is Sue and I'm 49, my hubby's name is James and we lhave 2 grown kids. This is a wonderful and very informative site. Such compassionate people who understand how you feel and the advice they give is very valuable.

    Gentle hugs

    Sue

  • Hiya, ☺️

    Morning, I am not so active early in the day, my poor hands have to have a little warm bath before they can "get a grip" lol.

    thank you for taking the time to reply.

    Take care

    j x

  • Welcome from another fairly recent diagnosis. I have found reading this site really supportive. Makes me realise that I am not alone or imagining things 😊

  • Morning dotscott, or as my autocorrect wants to call you "dot's out" !!

    The mind boggles.

    Thanks for the reply

    Take care

    J x

  • Welcome Jayne- I find the forum is incredibly useful and hope you do too! There are so many different medication regimes, no two seem alike. I live in Canada and the treatments and protocols are different from Great Britain but I still find it great chatting with real people who are going through the diseases and different treatments.

    Just a quick comment that sometimes taking the oral Methotrexate at night is better as you can sleep throug some of the side effects.

    All the best! Cheers Doreen

  • Hey,

    Thank you for the rely and the great tip! I was advised to take each individual tablet with food so that it didn't over run the system, kinda like sneaks it into your blood if you like. Still makes me feel pants, and doesn't stop my hair from falling out and my mouth feel like I have been sucking lemons all week!

    Still could be worse, I could have a photo of me wearing an orange Sainsburys carrier bag on my head put on the Internet ..... Clearly that was before the 5p charge as I would not be so wanton with its use now.

    J x

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