A little frustratrated with the lack of support in ge... - NRAS

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A little frustratrated with the lack of support in getting MTX injections, update and a general moan - off topic😤

Flor1rence profile image
Flor1rence

Are you all ready for this?😂You may remember I posted 7 days ago about non delivery of injections, well arranging delivery I should say😉

On 26th May I left a message with my dermatology nurse to say Alcura haven't had a prescription from the hospital for my meds. Nurse on leave till 2nd June. Had a reply back to say they have sent it to Alcura and I will hear from them last Friday, well as I hadn't heard I contact on Tuesday morning to Alcura and they still state they haven't received a script! Walked to car after work on hold to dermatology, I said if I can't get the meds then I will stop taking the MTX as I'm done with keep chasing, im just going backround in circles, she could hear I was fed up! I returned from work and got a call from Secretary saying they have the prescription, few moments later had a call from my nurse from a different NHS hospital saying she has e mailed again so I should hear something today.

Today I went off to work, started at 8.30 am heard nothing so contacted Alcura after my very late sandwich at 2.30 to get the same response, no script. I said to her it was chased on 27th and again yesterday this cannot be right can you check and phone me back. She called me back from Alcura 45 mins later to say it has been received today but I can't arrange delivery because the necessary checks haven't been made! I look forward to hearing from you tom i replied and she said probably not, maybe Friday cause the checks take time😂if you do not hear anything by Friday give us a call. If I don't hear tom i will be phoning my nurse and she can chase it, I've had enough of being on this roundabout I seem to have found myself on😂

Sorry for the really long boring post but I feel this is terrible service, can you imagine if it was my elderly mother that is hard of hearing and relies on us children to make her phone calls😉thank you for reading😊x

59 Replies

Well, what I really want to say is not suitable to write here! It’s sooooooo bad. They’ve had so much time to sort this and have failed at every turn.

Like you say, though, imagine it were someone who has trouble communicating that was having to jump through all these hoops.

Not impressed at all! Fingers crossed for later in the week xx

Flor1rence profile image
Flor1rence in reply to LoneEra

yeah absolutely, fingers crossed otherwise this patient might lose her patience😂x

🤬x

Sweet baby cheeses that's a crap day you've had there.

They need to send you a few months worth at this rate, flippin eck.

Thats one big pile of crap *man is stood next to big pile of animal poop*

The description of the image has just made me 🤣

phew😷xx

💩😂

sweet baby cheeses! I laughed and laughed at that!! and big pile of poop! FABULOUS DARLING😂

I've had problems with Alcura saying they haven't received prescriptions too. I spoke to my consultant's secretary and she was adamant it had been sent. Thankfully she's very on the ball and sent them a no nonsense email. I've had to phone them on several occasions when they haven't contacted me to arrange delivery🙄

Flor1rence profile image
Flor1rence in reply to MadBunny

glad I'm not the only one MadBunny😂x

I am so sorry and saddened to hear this. I am glad you have kept chasing them up but as we know RD likes nothing more than it's pals stress and frustration to add to the mix. So I'm glad you have shared it as sometimes it can bottle up and RD loves that. Hope it all gets sorted out and soon too, take care Flor1rence xx

Flor1rence profile image
Flor1rence in reply to Pippy25

thanks Pippy x I've flared up atm but maybe work and the heat😉

Oh what a carry on for you Florence. I had good care from Alcura when I was on MTX injections. I really do hope that it all gets sorted tomorrow as this has been going on for far took long for you. xx

thanks yes, 1st time it happened😉hows Billy cat now on meds? xx

Billy cat seems okay thanks Florence. I really hope that today is the day that you get your MTX injections x

nothing yet my dear! I will call my dermatology nurse to chase it tom if no contact today. how are you feeling today? xxx

This is just awful for you lovely. It is ridiculous that you are getting such a run around to get your medication. I’m doing ok, very weak and extremely tired but ok. xxxx

I pray for better days for you, it takes time doesn't it for your body to heal, its so lovely to be able to have nice support on this site💗xx

It is so nice being part of this lovely forum. I have felt so supported by you all when I have very little support from local friends. I have had a severe infection according to my doctors so may take me a little time to get back on my feet but am so pleased to be well enough to be home. ❤️ xx

wishing you a speedy recovery🌹xx

Talk about being given the runaround! 🤨I’ve had very similar from HaH and my hospital pharmacy in the past. I hope your nurse gets this sorted for you this week if you can’t resolve it tomorrow. 🙏🏻

fingers crossed xx

🤞🏻💗🤞🏻💗

This is truly awful.

Flor1rence profile image
Flor1rence in reply to Oshgosh

hi, yes it is😕fingers crossed for today

Oshgosh profile image
Oshgosh in reply to Flor1rence

Fingers crossed.

Moan all you like darling thats why we are here. I have to say it is a dreadful service you have received from them. I would complain to PALS about the service you have had. Hugs.xxxx

Flor1rence profile image
Flor1rence in reply to sylvi

sylvi I'm shattered just trying to sort this mess out, let alone working😂terrible isn't it. Hope you okay today? xx

sylvi profile image
sylvi in reply to Flor1rence

It saps the strength out of you just trying to sort it out darling isn't it. xxx

Flor1rence profile image
Flor1rence in reply to sylvi

sylvi, you are one amazing lady, I'm shattered just trying to sort this mess out and working part time atm😂You manage to pack alot in your day😉xx

sylvi profile image
sylvi in reply to Flor1rence

Yes, but i can't work like you do my darling. I wish i could xxxx

Flor1rence profile image
Flor1rence in reply to sylvi

well sylvi you just need to keep making us smile on this forum😊xx

sylvi profile image
sylvi in reply to Flor1rence

I can be sure of keeping you all laughing if nothing else darling. xxx

It gave me so much stress when I was at my lowest point in 2015 and was in bed immobile as I needed the med they weren’t giving me to move! They let me down so badly my GP was ready to contact the press and to take me to hospital in his car and insist on seeing the rheumy! Then the med arrived with me, the morning if the day he was taking me down to rheumatology after his morning surgery. (HaH and hospital pharmacy both denying everything!). I’d waited 7 weeks for the delivery. Rheumy furious she could not do much about it. She was ignored by HaH and her own pharmacy. That’s when I phoned HaH and was told .. you are 47th in the queue! Errr I would not hold on for 7th! Bad times .. thank goodness HaH are far better organised now. Hoping you get your injections today. Having to work through this too must be awful for your concentration. Huge Hugs. xx

omg 47th in the queue that was terrible😨xx

LoneEra profile image
LoneEra in reply to Neonkittie17

Just read this. Oh my days. So bad. You must have been super stressed 😢 Glad they are much better now. I had HaH years ago and they were too efficient at one point and kept delivering stuff when I already had a fridge full. A much better problem to have, but I had quite a small fridge at the time and only had room for some milk and butter alongside it all 😂💗

Neonkittie17 profile image
Neonkittie17 in reply to LoneEra

Never had an over delivery issue with them but had a crazy delivery guy who wouldn’t wait and left without waiting for me to get to the door despite being told to phone and say when he was about to deliver next so I could be there waiting. Their text system is much better now and the two hour window slot. Waiting all day was crazy. I was told Saturday was my only time they could deliver once so we waited in all day and ... nothing! I think they had to make massive improvements as so much wasn’t efficient enough. It seems to be now.

Hopefully you'll get them today or tomorrow. However, this shouldn't happen. Take care as I'm sure the stress of it all can't be doing you any good. x

Flor1rence profile image
Flor1rence in reply to ABwn

thank you x

Yes I can imagine...I am that very elderly lady who has to wait for things to sort themselves out! With age comes acceptance that everything will sort itself eventually...or it won’t!

That is totally unacceptable. Soneone needs to take responsibility for this mess, sort it out today and deliver them to your door. Shocking.

Flor1rence profile image
Flor1rence in reply to Sheila_G

this is a mess Sheila, I'm calling them every day, but today I wait and tom I will get my nurse on the case😤x

Sheila_G profile image
Sheila_G in reply to Flor1rence

Sorry. I wasn't saying you sort it out. I meant they need to sort it. Terrible. I hope you get them asap.

Flor1rence profile image
Flor1rence in reply to Sheila_G

yeah I knew you meant them it is a mess isn't it! they need to get a delivery to me next week without fail, I think I better have a spare sharps bin at this rate😂x

Sheila_G profile image
Sheila_G in reply to Flor1rence

👍

Flor1rence profile image
Flor1rence in reply to Sheila_G

Sheila, hoping to get delivery on Wednesday, had to push for this as an emergency!

Sheila_G profile image
Sheila_G in reply to Flor1rence

Great news. At last. Well done. Hopefully this was a one off and it doesn't happen again.

Flor1rence profile image
Flor1rence in reply to Sheila_G

I really hope so😤

Sick of them ( GP in my case) too !

Neonkittie17 profile image
Neonkittie17 in reply to allanah

😢 Sorry to hear .. thought all was going steady with rheumy appointments and injections etc. I mean I know your knee is not good 💗 but thought they were seeing you. Haven’t seen a consultant or GP since January 2020. Phone calls to nurse yes, and infusion but no (much needed) advice re my med or side effects. 😑 xx

Flor1rence profile image
Flor1rence in reply to allanah

it's all falling apart allanah😂x

allanah profile image
allanah in reply to Flor1rence

The world has gone crazeeeee

Flor1rence profile image
Flor1rence in reply to allanah

yes it sure has, I called doctors at 8.30 this morning still not any further forward after triage 6 texts from him😤

allanah profile image
allanah in reply to Flor1rence

Turn up at reception demand to speak to practice manager

Flor1rence profile image
Flor1rence in reply to allanah

just chased it ....reception said the lines shut at 6pm but he may call me after😣if I don't hear anything today I will go there in person tomorrow

I'm sorry to hear this Flor1rence, it's quite disgraceful isn't it. I hope it's sorted, and soon for you. 🤞 xx

yes it's pretty bad having to chase every day this week, nothing yet! how are you keeping? xx

Ugh. I've been there. It does make you want to give up.

Flor1rence profile image
Flor1rence in reply to whaleroad

it does, same for doctors today called at 8.30 this morning had triage 10.20, 6 texts now waiting!!!!!!

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